For many years now my neurologist has wanted me to wear a brace on my legs. I finally gave in to this and was fitted for the brace. Why did I need a brace? Why would anyone with MS need a brace? Well there are several reasons a person might benefit from a brace let’s start with weakness of the muscles. Muscle weakness can cause a problem called foot drop where the top portion of your foot drags on the…
A week in my MS world. I already had my rant of distress this week. So far the week has been better but it’s Thursday and I still have a lot going on. If you have MS maybe you’ve heard of the studies of biotin in high dosages that seem to help people with more progressive stages of the disease. This study which was done in the US is still small but larger ones have been done in other countries….
I don’t like to rant. I try to keep my blog in a positive state of mind but sometimes I just am exhausted. I don’t need to do much anymore without suffering the consequences. People who haven’t seen me since the day I left my job would be amazed I would think. I have and continue to get worse. Sometimes my hands get so tired I can’t pick up my fork to eat dinner. My legs not only get tired…
I did something yesterday I haven’t done in at least 15 years. I went down to Long Beach and went down the boardwalk. I met a friend who lives right on the ocean front in one of the many beautiful buildings down in Long Beach. She met me on her scooter. Took me to park my car. Put together my scooter and away we went. We went down to from her building to the west ends end of the boardwalk….
Woke up this morning to the phone ringing. It was my mom who is really jealous of my sisters new garden that seems to grow vegetables something her garden refuses to do. After some more mindless chit chat, I hung up with mom and decided to mentally prepare to take my dogs out for their walk. If you read my prior post on walking them this can be a traumatic experience. However today the sun was shining down on me…
How many times have I said I can do it, no big deal to pay the price for it during or after. About a month ago we were with the family in the city going to have dinner. The restaurant was only 4 blocks away, no big deal, they weren’t avenues. We certainly didn’t need a cab. It wasn’t raining too badly. After block 1 that voice inside came up saying uh oh…this isn’t going to go well. The four…
I have had multiple sclerosis for 18 years. It was Valentines Day 1998 when my symptoms started. Three days later I couldn’t really walk. First I saw an orthopedist he took one look at me and sent me to a neurologist. When he told me that it was probably MS. I cried. I cried because I really didn’t know what the hell MS was or what that was going to mean to my life. So here I am 18+ years…
