Good morning and happy Friday to everyone. Most of the time I dictate my blog through the voice on my iPad. Then I go back and correct any mistakes, which are usually a lot and sometimes hilarious. What obviously never comes across is my voice inflections when I’m speaking, probably why my humor doesn’t come across. I guess you can’t hear sarcasm in words that you read. Oh well, back to my topic, which this morning is, that I started…
We’ve had a turbulent relationship over the last 19 years to say it mildly. There have been many one-sided fights. I’ve told my story before bug sometimes it’s worth repeating. My first MS attack (exacerbation) was sever. The entire left side of my body went numb and atrophied. I couldn’t walk, hold anything or feel on the left side. It came on fast starting in my foot on a Saturday and by the time I saw the doctor that Friday…
Let me first address the fact that it took an hour and 45 minutes to get into the city for my check up. That means I’m doing nothing for all that time. I was her first appointment that morning. When we do my neurological checks and timed walking, I’m at the best I’m going to be. Therefore the check up is based on this point. However how realistic is it? This is the first time I was her first appointment,…
I can’t even write a post today. I know what I wanted to write I just don’t have any more energy to do it. So far this morning I’ve had to go and recopy Social security documents that I sent out yesterday. The reason why is because they were too big to fit behind the mailbox for the mailman to actually take so my daughter left them in the mailbox and I have no idea if it was actually taken…
For all the bad moments, there are always good moments. I would love to say that I’m feeling a lot better, that whatever is brewing with my MS is gone, but I unfortunately can’t. However as always, I’m back to my normal, my usual somewhat positive self. I think that might have to do with the fact that my little sister is in from California and I’m seeing her today. The sun is out, although that wind is howling, but…
Yesterday was a bad day. First my doctor visit went as expected, which was nowhere. What I mean, is that not much could be done at this point, my symptoms are treated symptomatically. He doesn’t really think that I’m experiencing an MS hug, I don’t even think he really understood what an MS hug was. He’s been my doctor for 19 years and for the first time ever, I was a little shocked. Especially since the first thing we were…
I’ve figured out the key to my feeling good everyday, or I should say as good as possible, DO NOTHING. Let everyone do everything for you so you are very rarely getting up and you could have really good days everyday. I would need to hire myself a full time assistant to do everything for me their duties would include working out every morning but transferring the benefit to me making and bringing me my cup coffee making and bringing…
I spent a lot of time hitting the floor yesterday and not by choice. Since becoming vegan I’ve had episodes of an unsettled belly. Ok I can understand that. However when you try to make a B-line to the ladies room with multiple sclerosis, doesn’t usually workout too well. The term run isn’t in my vocabulary of things I can do anymore and walking fast can cause other issues. HELP I’VE FALLEN AND I CAN’T GET UP!!!! I should be…
I was asked today by my physical therapist how are you? I am sure anyone with a chronic disease thinks this is a loaded question. Actually a good friend of mine called me the other day and said, “I’ve learned so much about you and what you deal with on a daily basis from reading your blog. I never knew. Some of it makes me laugh, some makes me feel so bad that I can’t help you, but I never…
