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Tag: cochlear implants

Love to my daughter

Love to my daughter

My baby is bringing her stuff down to her car again. I have both dogs on me staring at the door I might be just as sad as them, not because she’s leaving, because she’s still having a tough time with the roommates. We are trying to find someone to take over her portion of the lease and she’ll move back to campus housing but we haven’t been successful yet. It is a bad situation and I hate having to…

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Migraine day 4

Migraine day 4

This will be brief because I don’t have too much energy for concentration. I just can’t get out of the migraine cycle. I took my migraine pill yesterday didn’t help. Took it again today and that’s really not good. I take a preventative medicine for migraines, Topiramate. I’ve been taking Topiramate for 4 years increasing from 25mg to my current dosage of 75mg. My doctor just increased the dosage and the times I take it. Now I’m taking 100mg but…

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The never ending aggravation of insurance

The never ending aggravation of insurance

I’m gazing out the window, trying to decide what I want to write about, and I’m really looking at just a wall of white. There’s a very thick fog out there. I can’t see the ocean. My dog obviously sees something he keeps barking. I’m not in a happy mood today. I’ve got two things I’m dealing with insurance about, one for me, and one for my daughter and I’m just so fed up with this stuff. I got a…

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With 2 minutes to spare, my daughter made it to her first college class

With 2 minutes to spare, my daughter made it to her first college class

It really started last night.  Because my daughters is deaf and wears cochlear implants that come off at night, she needs an alarm clock that will shake the bed to wake her up. The school has one that they put in the room that is tied to the fire alarm but we had no idea how to work it. So we took her alarm clock from home that she’s used for the past 10 years.  She brings it to her…

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Part 2 My daughter’s triumph being deaf with cochlear implants

Part 2 My daughter’s triumph being deaf with cochlear implants

My daughter’s first cochlear implant was done when she was 3 years old. When I made the decision to put in a cochlear implant, I was also making the decision to make her completely deaf. She would have absolutely no hearing in the implanted ear when the cochlear was off. This is a sweet video of a young boy whose implant was turned on for the first time https://youtu.be/9EVNfd1igoE. This was not AT ALL how it went for us. My daughter…

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My daughter’s triumph being deaf with cochlear implants.

My daughter’s triumph being deaf with cochlear implants.

I have so much going on in the next month I’m a little overwhelmed. I’m trying not to think about it. The most important thing is my daughter turns 18 in a week. ONE WEEK SHE’S 18!!! How did this happen? What a long road we had. My daughter was born a little over a year after I was diagnosed with multiple sclerosis. The neurologist took me off birth control, and the pullout method didn’t work. The best accident I…

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Good morning Monday

Good morning Monday

it’s the beginning of another week. Kind of strange when you don’t work because you’re weeks don’t normally run like a workday week. However every Monday is physical therapy and my daughter is back to school so I still consider it the start of the week.  March is my last month of physical therapy, then it becomes a self-pay. They run a really great program called strive. You pay a monthly fee and you can use the gym and equipment…

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A life with disabilities-my daughter’s college essay

A life with disabilities-my daughter’s college essay

My mother tells the story of when I was two and she walked into Tutor Time. The door opened and every child’s head turned but mine. That led to the diagnosis that would affect my entire life. We found out I had a progressive hearing loss called EVA (enlarged vestibular aqueduct) and when my mother walked through that door, I had already lost all the high frequencies in my hearing. I received the first of two surgeries for my cochlear…

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Heroes get back up

Heroes get back up

Ive been a Humpty Dumpty collector since I was a baby. I’ve had past blogs on my childhood friends. I still sleep with them at the age of almost 45 and I’m not embarrassed. They make me happy and give me a sense of security. After long days and tough battles I’ve stopped apologizing for the little things that put a smile on my face. The picture above was a pin given to me when I was first diagnosed with…

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