Let’s see if I can have one of my infusion without any issues. I’ve already received the call to verify my new insurance information and have heard nothing since. Last time was the mistake where they once again order the split in the medicine and I did 300mg two weeks apart when I was supposed to take the full dosage of 600mg one time. So even though I’ve been on Ocrevus now for over a year, I still have yet…
I realized something being away, my home is definitely the easiest place for me. I love my sisters house it is absolutely beautiful. It’s very easy for me to get around on the first floor. However, there is no bathroom with a shower. They made a shower outside which is really cool but it’s a little more difficult for me to get to. It’s difficult for me to navigate her outside property. The outside property is so amazing but getting…
My first unofficial MS relapse was optic neuritis in 1997. Six months before my diagnosis. The optic neuritis wasn’t even diagnosed at the time of the relapse it was realized after my diagnosis. I was working in a fast food restaurant as an assistant manager, who was about to be promoted. However, my manager at my current location and I didn’t always see eye to eye. She added a lot of stress to my situation at work. I couldn’t wait…
I am so run down again and I don’t even know what I did. Of course I do, it was the stress of the parking space that I’ve dealt with for the last week https://multipleexperiences.org/2018/08/08/he-called-me-a-bad-name/. Ever since I stopped working, I have very little stress in my life. Aggravation, yes with my insurance company I deal with that all the time. For some reason every now and then I get into some sort of stress situation my body just can’t…
To recap my situation, I had asked my condo for a permanent parking spot close to the main door. This was because it was the only door I could enter that didn’t have steps, which I can’t do, and wasn’t too far for me to walk. It was granted. Then due to other condo residents requesting the same thing, they gave 5 other people spots. The non-disabled residents had an uproar. Now they voted to revoke ALL the reserved spots….
If you follow my blog you know I’m normally positive. I don’t have the energy to be positive right now. I am so tired of being 46 and having to have somebody cut my food. If I make some sort of protein for dinner, like steak which I recently started eating, my aid has to cut it before she leaves. I could barely even cut chicken. I can barely use one of my stainless steel silverware and usually opt for…
Since I was in the hospital, this is one of the pills that has changed. First it never made my weekly pill box, which was just a complete oversight. Second, the hospital doesn’t give that out. So I must say I haven’t correctly taken my high dose biotin for a week. It occurred to me, this morning, that this could be the reason I’m having difficulties regulating my body temperature since about Saturday. I finally started taking it again 3…
Since I was in the hospital, this is one of the pills that has changed. First it never made my weekly pill box, which was just a complete oversight. Second, the hospital doesn’t give that out. So I must say I haven’t correctly taken my high dose biotin for a week. It occurred to me, this morning, that this could be the reason I’m having difficulties regulating my body temperature since about Saturday. I finally started taking it again 3…
I guess this is kind of like a part two to yesterday’s blog before I was diagnosed. https://multipleexperiences.org/2018/06/25/before-i-had-multiple-sclerosis/ What I’m not going to write here is about my attack in 2014 that really disabled me. What I am going to say is what I would change if I could go back. Again hindsight is 20/20 but this is for the newly diagnosed and people more on the early side of their onset of multiple sclerosis. When your first diagnosed, it’s…
I was 26 years old when I was diagnosed. I’m 46 now. It’s been 20 years. It’s hard to remember what life was like before it. It becomes a blur because I also had my daughter at 27. When I had my first attack, my entire left side went numb with muscle atrophy and they needed to rule out stroke. Due to this fact they made me come off birth control. They just forgot to tell me I was clear…
