ok maybe not a cyber crash but I’m taking a crash day. I’m going to go back to bed and recharge, regroup, refuel and recoup. I haven’t done a full day where I spend the day in bed in a long time but I think I need to today. I went to bed super early last night and I’ve been up since 2:30am. I let thoughts take over that shouldn’t be plaguing my thoughts anymore. No matter what I did…
How are you feeling? I never thought I’d hate a question more. Doesn’t it seem like EVERYONE asks you that question when you have a chronic illness. I have my standard answer to people which is, “I’m good”. I mean what else are you going to say. Truth is half the people that ask the question don’t even want to know the real answer anyway. I don’t even mean that in a mean way, it’s just people are self absorbed…
I saw this quote one day and it rang true. “You’re only alone if you don’t like who you’re alone with.” I’ve always been that person who had trouble being alone. I never really liked myself. I hated my body thought I was fat, not worthy of good things, unlovable and didn’t have any value. I also on top of it had multiple sclerosis so who would accept me. I’ve lived my whole life with a low self esteem, no…
I’m asked a lot, by my family, if I’ve learned anything since I started writing this blog. The biggest thing I’ve learned is that somehow we all understand what each other goes through. I follow a lot of people with some sort of chronic illness. I read their blogs and can totally relate to what they are saying and I get comments all the time that they relate to what I am saying. It doesn’t have to be someone just…
This picture hangs above my kitchen table. It was originally a gift my sister and I bought for my dad but has been with me since the day we tried to give it to him. My dad explained art doesn’t speak the same to everyone. The picture always spoke to me. I always fantasized looking at this picture. To be that wealthy, beautiful lady dancing in the rain on the beach with someone she was completely in love with. I…
It was one of those nights. I was up all night. I had a little bellyache. I ate Chinese food, I never eat Chinese food. My belly didn’t agree with the Chinese food. Instead of going into the details of why I was going on all night let’s discuss the details of sleep. The average American sleep 6.8 hours a night. The average MS patient probably needs a good 12 hours a night. I’m willing to bet they don’t get…
I have finished my first bottle of high dose biotin. I’ve been taking a 100mg pill three times a day as the clinical studies patients were taking. My doctor felt that it was an excellent option for me to try since I am clearly progressing. She found a website www.highdosebiotin.net where you can purchase the pills without a prescription. It is slightly costly at $60 a bottle. Before I tell you my first month thoughts on it let me explain…
In New York, you don’t need much to get a permit for handicap parking. I got my first handicap parking permit when I was working in NYC for the parking at the train station. It was very early in my MS years and I was relatively well at first look. I’m sure when I used the parking permit and people saw me get out of the car there were quick judgements that I looked fine, why did I need a…
For many years now my neurologist has wanted me to wear a brace on my legs. I finally gave in to this and was fitted for the brace. Why did I need a brace? Why would anyone with MS need a brace? Well there are several reasons a person might benefit from a brace let’s start with weakness of the muscles. Muscle weakness can cause a problem called foot drop where the top portion of your foot drags on the…
If you’re newly diagnosed with MS chances are you have in the middle of coming off of having some sort of attack or relapse or whatever you want to call it where you got sick and your diagnosis was made to be MS. At this point is usually shock. And I’m sure you come home from seeing the doctor and go right onto the Internet looking up everything you can possibly look up for MS. But let’s start at the…
