In New York, you don’t need much to get a permit for handicap parking. I got my first handicap parking permit when I was working in NYC for the parking at the train station. It was very early in my MS years and I was relatively well at first look. I’m sure when I used the parking permit and people saw me get out of the car there were quick judgements that I looked fine, why did I need a…
For many years now my neurologist has wanted me to wear a brace on my legs. I finally gave in to this and was fitted for the brace. Why did I need a brace? Why would anyone with MS need a brace? Well there are several reasons a person might benefit from a brace let’s start with weakness of the muscles. Muscle weakness can cause a problem called foot drop where the top portion of your foot drags on the…
If you’re newly diagnosed with MS chances are you have in the middle of coming off of having some sort of attack or relapse or whatever you want to call it where you got sick and your diagnosis was made to be MS. At this point is usually shock. And I’m sure you come home from seeing the doctor and go right onto the Internet looking up everything you can possibly look up for MS. But let’s start at the…
Billy Joel’s song Honesty is playing through my head right now, why? Because when it comes to your MS doctor it is the only way. Your MS doctor is probably a neurologist of some sort maybe they’re an MS specialist maybe they’re not, but whatever the doctor you need to have a special enough relationship with them that you can speak honestly. You need to be able to be really comfortable that you could say anything especially as the years go…
Could I honestly have MS for 18 years and never discuss a symptom that will eventually effect 80% of people with MS. Let’s start with basic urology lessons of what a healthy bladder does when functioning correctly. We make urine in our kidneys that travels down two tubes called ureters to the bladder, an elastic sac that holds urine. When all is good and working right as the urine is stored the sac expands. When it expands nerves in the…
It’s not listed in the MS symptom book but I have issues regulating my body temperature. It happens more often then I care to admit to and usually in the morning when I go out for either brunch or breakfast. I get coffee nothing unusual and eat and it causes my body to sweat. Sometimes is only a mild thing other times I’m in a full blown sweat where my hair line is wet my clothes are wet and you’d…
My last day of work was January 21, 2016. That was almost 9 months ago and I still follow a Monday through Friday week. Probably because my daughter is still in school and I wake up with her every morning so come Saturday and Sunday I can sleep later. I can’t imagine working. I’m so tired on certain days from doing so little the idea of what I used to do blows me away. how I ever did it? This…
At the time I probably meant when I said all that positivity stuff but it didn’t take long for it to go right out the window. I do try mostly to follow a very positive lifestyle but sometimes the MS just gets to me I get overwhelmed and things go downhill fast. My day didn’t really start good even before I wrote that post. During my exercise I wasn’t in a good mood I wasn’t happy with my program I…
I’m happy to report after putting myself to bed at 9pm and sleeping until 9am I’m feeling better. I must say I hit my overwhelmed state yesterday evening. I’m off my routine completely. I haven’t meditated in four days, I haven’t really worked my course of miracles workbook in two days and yesterday I skipped an exercise day which I haven’t done in months. Let me tell you it makes a difference. School starts again tomorrow for my daughter and…
I got my first infusion of Rituxan on May 29 and received the second September 16. Rituxan is technically not slated for MS as of yet however it’s counterpart Ocrelizumab is its sister that will be coming out in 2017. What this drug does is it knocks out all the B-cells one of your immune fighting cells. I’ve been on just about all of the MS therapy drugs at some point or other except for the newer ones that have…
