I got my first infusion of Rituxan on May 29 and received the second September 16. Rituxan is technically not slated for MS as of yet however it’s counterpart Ocrelizumab is its sister that will be coming out in 2017. What this drug does is it knocks out all the B-cells one of your immune fighting cells. I’ve been on just about all of the MS therapy drugs at some point or other except for the newer ones that have…
Well good morning self sabotage, how you doing today? Yeah I know it’s all me. Making bad choices and then throwing my hands up. I’ve been writing this blog for three months you think that finally something with sink in, NAH. I have finally excepted that the chance of me losing the last 20 pounds is pretty slim. Would it be better for me with MS? Of course but I think there comes a point where your body just…
He comes to the door with this humongous bouquet of flowers. I’ve gotten roses before probably picked up at the nearest supermarket but it was obviously nothing like this. I was speechless which is rare for me. Before I met my husband my dating life wasn’t anything to write home about. I was awkward as a teenager and insecure throughout my twenties and thirties. When I met the ex-husband he was the first guy that really liked me that the…
This is a true story. There are no made up facts to the story. It is actually how it really happened. I say this with a really big smile because you need to believe in this stuff. I’ve been working with my Life coach on manifesting money. We’ve come to the realization I have a very unhealthy relationship with money . I’m terrified that I won’t have enough and I’m terrified to spend what I actually have. So I hoard…
ive told the story in past posts about my parents and the pain my MS has caused them. To watch your child hurt and suffer when you stand by helpless is the worst feeling for a parent. I know my disease has repeatedly broken my parents (all 4 of them) hearts at various times through the years. I’ve had challenges with my daughter too. She was born with a progressive hearing loss. It is called EVAS, enlarged vestibular aqueduct syndrome. Her…
Did I ever make a post for part one? Not even sure. But I know I’ve had a lot of posts about dating and here’s another one. I’m going on a date today actually in a couple hours but this one I’m looking forward to. This is a gentleman from match.com. He actually reminds me of a good friend of mine that I met on match.com probably nine years ago already. We went on one date to a Paul McCartney…
*** this exercise was from a book I read return to love by Marianne Williamson that I did previously when I read it I was recommended again to be done at my life coach so this part of the exercise is the letter that MS writes me in response to the letter I wrote yesterday. Dear Jamie, I’ve read your letter and I can hear the pain in your words. I don’t know why I chose you. I don’t even…
Dear Multiple Sclerosis, It’s been 18+ years you’ve been in my life. Your like that negative friend I can’t break away from. I’ve written this letter to you before but my life coach has asked me to revisit it because she feels that maybe I wasn’t fully honest in that letter. You see I try to put up a brave face. When the diagnosis came people were devastated around me and I felt I needed to be strong. It wasn’t…
I remember 18+ years ago being at that neurologist office when my entire left side of my body wasn’t functioning. I couldn’t really walk, I had muscle atrophy, numbness, weakness and gait difficulty. The doctor asked if anyone else in my family had MS. He knew before the MRI was even done. I sat crying in a chair as my mom leaned in front of me and said “everything was going to be ok”. We got in the car to…
