I received an email yesterday about a new drug for progressive MS called Ocrevus. https://www.cbsnews.com/video/new-drug-provides-hope-for-those-suffering-with-ms/I don’t get it, I’ve been on Ocrevus for almost 2 years already. Is it really still new news?
I wish I could rave about this drug that it has done wonders for me, but it hasn’t. I haven’t had any relapses and for that I am thankful but it certainly hasn’t halted my progression. I am worse today than I was two years ago. That is my unfortunate truth.
I am actually changing as of my next dosage to Rituxan, the sister drug to Ocrevus. I just feel Rituxan has been around for over 15 years and the drug itself has more history. Ive blogged about the two drugs here https://multipleexperiences.org/2017/06/28/ocrelizumab-ocrevus-versus-rituximab-rituxan/. My MS specialist had no problem with me switching back to Rituxan because I felt safer with its side effects and history. The two drugs are very similar. I was on Rituxan prior to Ocrevus but was forced to change because of insurance.
Unfortunately Ocrevus or Rituxan is still my best option for medication until Ibudilast comes out. I am still progressing even on this drug but there isn’t anything on the market that is better. I’m in a place where all I can do is hope. I can hope I don’t progress too much before something better comes along. Maybe stem cell will become less evasive and that would be an option. Right now I am waiting for ibudilast which is my next hope.