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Tag: living with multiple sclerosis

I know there was wine…

I know there was wine…

This is the first day I am actually Writing my blog from my balcony. My new furniture came in yesterday. It’s very pretty. I open my sliding glass door got some air coming in. The sun is beating down on my face causing me to sweat a little. Truthfully I need to sweat a little, sweat out some of the alcohol from last night. I don’t know what it is about my firestick friend, when he comes over we seem…

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Circulatory issues possibly Raynaud’s Syndrome

Circulatory issues possibly Raynaud’s Syndrome

So I went to the podiatrist. As soon as he looked at my feet the first words he said was your feet are swollen. He asked if I could possibly have Raynaud’s syndrome, have I seen a vascular doctor? Oy-vey… I knew the swelling isn’t normal but another doctor. He said the good news is I feel the pulse, that means that the blood is in there still circulating through my feet. However, he said this is the circulatory issue…

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Ocrevus infusion: how you feel the following weeks

Ocrevus infusion: how you feel the following weeks

Every six months it’s hard to remember what happens. I should look back to my own blog posts. I was so wrapped up in how the steroids made me sick that I forgot that they would also give me burst of energy. It explains how I stood for a half an hour during a work out. This week that burst of energy went from 100 to about 30. I wrote that my workout was pretty bad in terms of stamina…

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Swollen toes and feet and fungus…yuck

Swollen toes and feet and fungus…yuck

I slept in this morning. It was nice. I think even my dogs were still tired because both of them remained snuggled up next to me in bed. I woke up again with a headache. The good news is is that regular aspirin helps and then it goes away, the bad news is that I think this is my fifth or sixth day waking up with a headache. This time I think it’s a little more weather related because it’s…

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Good MS days are few

Good MS days are few

It’s always a good day followed by bad days. Doesn’t it always seem to go that way? I woke up this morning feeling like I smoked six packs of cigarettes. I haven’t smoked in almost 4 years maybe more. I hate that feeling. It’s something like the MS hug but not quite. I have a headache mild but there nonetheless. I also had a little numbness going down my left side out of nowhere. My stamina in my workout was…

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Bathroom issues with multiple sclerosis

Bathroom issues with multiple sclerosis

My poor Marshy was sick all night. When my dog is up sick, I’m up. It was a long night but he finally got whatever was in his belly out. Unfortunately it came out all over my blanket that now needs to be cleaned. After that final incident, he was finally able to sleep. It’s a crazy coincidence, but I too woke up sick this morning. Today I normally go to physical therapy. I woke up I got dressed and…

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My own handicap parking spot

My own handicap parking spot

The sun is out. My view is beautiful. My furniture for the balcony has been ordered and soon my blogs will be written from there. My little four-legged angels let me sleep a little in later today. I just woke up feeling great. It is just so nice to feel better. I have to admit it was a rough couple of weeks but that Ocrevus infusion. It really wasn’t even the Ocrevus that did it, it was the steroids. It’s…

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Comfort Height Toliets

Comfort Height Toliets

Who writes a blog about toilets? Well, I guess I do. When I moved into my condo I had the smallest toilets. I had to give people a warning so they would be aware, it was a big drop down before your butt hits. For someone with MS, this created a very big problem. There were times I slid right off the toilet. Then there were other times I couldn’t quite get off the toilet. It was so low down…

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Is it Ocrevus?

Is it Ocrevus?

Two amazing things happened over the last two days that I have to tell you about. Yesterday I actually swam in the pool. I do the shorter side of the pool as opposed to the length for safety reasons. My poor aid doesn’t want to have to deal with jumping in and trying to save me where I can’t touch the bottom. There I was, back and forth and back-and-forth for almost a full half an hour in the pool….

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Walking in my shoes – Depeche Mode

Walking in my shoes – Depeche Mode

I saw this title on someone’s post, and it just brought this song to my head. I used to be a giant Depeche Mode fan. I really grew up listening to both Depeche Mode and U2. I seen them in concert almost as much as I seen U2. Now I barely listen to either one of them. Strange, because I still love their songs. Anyone who has a chronic disease understand the term walking in my shoes. So today I…

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