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Tag: living with multiple sclerosis

Perseverance, persistent or just plain stubborn

Perseverance, persistent or just plain stubborn

I don’t know which one I am take your pick. If you haven’t read my post for the last couple of days, I had an incident. I slid to the floor and I wasn’t able to get up.  One of the culprits could’ve been the fact that I increased one of my medicines, Gabapentin which is the generic form of Neurontin, due to the pain in my shoulder from tendonitis. I increased it on Sunday, and the incident happened on…

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Starting the process of getting an aid

Starting the process of getting an aid

Good morning and happy Friday to everyone.  Most of the time I dictate my blog through the voice on my iPad. Then I go back and correct any mistakes, which are usually a lot and sometimes hilarious. What obviously never comes across is my voice inflections when I’m speaking, probably why my humor doesn’t come across. I guess you can’t hear sarcasm in words that you read. Oh well, back to my topic, which this morning is, that I started…

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Emotional freedom technique

Emotional freedom technique

This is actually a reblog of mine. I used tapping for weight loss and self esteem issues some time ago. I must admit, I haven’t been doing it at all lately, but I know it’s a great tool. I’ve been having problems sleeping. I’ve been waking up almost every hour. I can’t stress how important sleep is with MS, or any chronic condition for that matter, and I’m not getting enough. In my email today was an article about tapping…

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Me and multiple sclerosis

Me and multiple sclerosis

We’ve had a turbulent relationship over the last 19 years to say it mildly. There have been many one-sided fights. I’ve told my story before bug sometimes it’s worth repeating. My first MS attack (exacerbation) was sever. The entire left side of my body went numb and atrophied. I couldn’t walk, hold anything or feel on the left side. It came on fast starting in my foot on a Saturday and by the time I saw the doctor that Friday…

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Counting spoons

Counting spoons

I’ve been up since 4am, listening to old episodes of Cheers, while I laid in bed praying I’d fall back asleep. Even Zoey and Marshy were snoring away, but not me, I just laid there, hour after hour. I finally gave up at around 7:30 and made coffee. I start each day with a certain amount of steam in me that fizzles as the day goes on. How much steam I start with can vary everyday. I read on a…

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neurological check-up, mentally preparing, Ocrelizumab, MRI

neurological check-up, mentally preparing, Ocrelizumab, MRI

Let me first address the fact that it took an hour and 45 minutes to get into the city for my check up. That means I’m doing nothing for all that time. I was her first appointment that morning. When we do my neurological checks and timed walking, I’m at the best I’m going to be. Therefore the check up is based on this point. However how realistic is it? This is the first time I was her first appointment,…

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Social Security Disability review

Social Security Disability review

Every morning I sit down with my cup of coffee, and I decide what I want to write about.  Today being no different than any other day. Marshmallow, of course the snuggling up next to me, and Zoey’s running rampage through the house. All of a sudden Zoey comes out running out of my daughter’s room  with a sneaker in her mouth. Wish I caught the actual action shot but had to settle for this instead. I’m up your Social…

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7 reasons why I decided to put Ocrelizumab (Ocrevus) back on the table

7 reasons why I decided to put Ocrelizumab (Ocrevus) back on the table

Yesterday the approval was made for Ocrelizumab for multiple sclerosis. If you don’t have access to the Internet, a newspaper , listen to the news, watch the news, have a friend, or a loved one, or possibly live under a rock, you might not of heard.  This drug has been showing promise and talked about for a long time now. I’ve actually been angry at all the buzz this drug has been getting., The reason why is because I’ve been…

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Just a quiet Wednesday

Just a quiet Wednesday

It’s strangely quiet in my house, which is weird when everyone is home. Mikayla is sleeping next to me, she woke up with a migraine so is going into school late. Marshy, who just got his vaccinations at the vet yesterday, is under the blanket. Zoey is sleeping next to me and in about an hour is going to the vet for her surgery. Me, I just did my Zumba, sitting on the couch, trying to recover my legs. I…

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Why me?

Why me?

Living with a chronic illness, there has to be at least one time you’ve  said, “why me”. Let me ask you a question, if you can take your disease and give it to somebody else, knowing how you suffer, would you?  I remember being in one of my doctor, with my step dad, and him making a comment about why I had to have MS. The life this disease has stolen from his daughter.  My reply was, maybe there is a reason…

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