I spent a lot of time hitting the floor yesterday and not by choice. Since becoming vegan I’ve had episodes of an unsettled belly. Ok I can understand that. However when you try to make a B-line to the ladies room with multiple sclerosis, doesn’t usually workout too well. The term run isn’t in my vocabulary of things I can do anymore and walking fast can cause other issues. HELP I’VE FALLEN AND I CAN’T GET UP!!!! I should be…
I was 27 years old when I was diagnosed with multiple sclerosis. At that time MS had 2 therapy drugs available Avonex and Betaseron. The information on MS wasn’t what it is today because the Internet wasn’t what it is today. I can’t remember how but I joined a support group for multiple sclerosis. I’d say 3/4 of the group were in wheelchairs. At the age of 27, who had recovered 95% from her first attack, this was NOT what…
Anyone with a chronic disease can tell you that those 4 little words, “you don’t look sick”, is enough to drive them crazy on the spot. I’ve written many blogs about symptoms of multiple sclerosis you’d never see. https://multipleexperiences.org/2017/01/23/multiple-sclerosis-serious-symptoms-respitory-issues/ https://multipleexperiences.org/2016/12/04/multiple-sclerosis-silent-symptoms/ https://multipleexperiences.org/2016/11/28/lets-talk-about-sex-and-multiple-sclerosis/ https://multipleexperiences.org/2016/08/05/im-not-tired-im-fatigued/ Multiple Sclerosis, especially in the beginning, can look silent at first. For the first 8-10 years I had barely a limp when I walked. I would fatigue if I walked too much and by too much I mean…
I woke up so angry and sad. My hometown bar is closing, last night was their final night. I spent most Friday and Saturday nights from the age of 35-39 there. I wasn’t going to go, actually the one person I thought would ask me didn’t even ask me (hurt feeling #1). Then I was asked by someone unexpected. At first I said yes but then common sense kicked in. First the group of girls I used to go with,…
It’s almost an eerie quiet in my house for 7:15 in the morning. Both dogs went back to sleep next to me on the couch. I just finished doing P90 sculpt B. I started doing the P90 series from http://Www.beachbody.com by Tony Horton but stopped when I started having issues with my shoulder. Doctor said I have tendinitis and arthritis. Lovely!!! Thank heaven for the cortisone shot that has done wonders. Anyway…I’ve completed P90X many times. It is actually my favorite of…
I don’t know if I can go so far as to say I am thankful for my MS, but I know I could say I’m thankful for the good days. I know I could say I’m thankful that I don’t have the symptoms of the pain. I give a lot of credit to those out there that suffer from chronic pain. That is the one symptom I really don’t know if I can deal with 24/7. So for all my…
When I got divorced I was very lucky and found an apartment around the corner from where my house was. My daughter who was only 7 at the time had very little disruption to her school life she just got on the bus one stop earlier. Now with college looming the thought of me moving to a place more disability friendly and with a yard for my dogs became the hot topic. My daughter was distraught though, to her this…
Happy Friday. The end to a very long week. This week knocked me out. Not that it takes much to do these days but this one was a doozy. Im about to wake my little sleeping cherub up because we have to head into the city. She received a new cochlear implant upgrade and her audiologist is in NYC. The trip in will hopefully not take more than an hour. I’m praying for a lighter traffic day due to the…
I’m happy to report after putting myself to bed at 9pm and sleeping until 9am I’m feeling better. I must say I hit my overwhelmed state yesterday evening. I’m off my routine completely. I haven’t meditated in four days, I haven’t really worked my course of miracles workbook in two days and yesterday I skipped an exercise day which I haven’t done in months. Let me tell you it makes a difference. School starts again tomorrow for my daughter and…
