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Tag: ms burden

Getting an aid getting help…accept, adjust, adapt

Getting an aid getting help…accept, adjust, adapt

For all the bad moments, there are always good moments. I would love to say that I’m feeling a lot better, that whatever is brewing with my MS is gone, but I unfortunately can’t.  However as always, I’m back to my normal, my usual somewhat positive self. I think that might have to do with the fact that my little sister is in from California and I’m seeing her today.  The sun is out, although that wind is howling, but…

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The daily life and experiences with multiple sclerosis

The daily life and experiences with multiple sclerosis

Yesterday was a bad day. First my doctor visit went as expected,  which was nowhere. What I mean, is that not much could be done at this point, my symptoms are treated symptomatically. He doesn’t really think  that I’m experiencing an MS hug, I don’t even think he really understood what an MS hug was. He’s been my doctor for 19 years and for the first time ever, I was a little shocked. Especially since the first thing we were…

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I’m leaving on a jet plane

I’m leaving on a jet plane

I’m all packed up and ready to go. My daughter Mikayla and I are going to Florida to visit my dad and stepmom.  I’m already exhausted and I haven’t even gone to the airport yet. My final morning items had to be packed all while watching the puppy. Zoey wasn’t being very cooperative to say the least. I just picked up the dog sitter now. I’m very lucky I have her. She loves my dogs almost as much as I…

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I AM SO TIRED

I AM SO TIRED

I AM SO TIRED I AM TIRED OF BEING BRAVE I AM TIRED OF PRETENDING IM NOT SCARED I AM TIRED OF TAKING A SHOWER AND LOSING EVERY OUNCE OF ENERGY I HAVE IN MY BODY I AM TIRED OF DOING THE RIGHT THING AND IT STILL BITING ME IN THE ASS I AM TIRED OF ALWAYS TRYING TO BE POSITIVE ALL THE TIME I AM TIRED PRETENDING I DONT HATE YOU I AM TIRED OF BEING ALONE IN MY…

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