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Tag: ms challenges

I’m 45 years old and I’m getting a nursing aide

I’m 45 years old and I’m getting a nursing aide

Certainly didn’t envision this scenario when I was young. I wanted to be a baker. I wanted to go to Johnson and Wales culinary school and become a great baker, not a cook. I don’t know what when I changed that dream to going to school for Hotel and restaurant Management, but I did, since that was my degree I graduated with. I know if asked later in my 20’s I’d tell you I should have been an accountant. However…

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A more structured life with Multiple Sclerosis

A more structured life with Multiple Sclerosis

This was a very long week. Came off an incredible high of my amazing weekend at the spirit junkie master class. Followed right by my doctor for my shoulder, getting a Cortizone shot and finally feeling better.  Going right back to New York City for another neurologist check up with my specialist. Wednesday through Thursday saw 24 hours of drama with my daughter and her boyfriend. Luckily, that ended with a three hour dinner with friends, lousy food but great company….

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Rocking Motherhood in 10 different ways despite MS

Rocking Motherhood in 10 different ways despite MS

I follow all the blogs I come across with people that have a MS. I like to see how they deal with it what’s going on with them, what medicine they take, etc. I like to read how they deal with the obstacles of having MS and balancing life. One of my personal favorites is Jen from http://Www.trippingthroughtreacle.wordpress.com. Jen’s blog is uplifting and inspiring despite her illness.  Jen has had MS for over 20 years. For me especially at 19 years…

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Am I depressed?

Am I depressed?

I have to be honest, I’ve been asked this more than once by family members, doctors and friends. For probably 15  of the 19 years I have MS, I was on Prozac.  I think in my 20s I was miserable for many reasons, especially when I got my diagnosis. However, the main reason for Prozac was because Betaseron, my MS therapy drug, had the side effect of depression.  It’s like you take a drug, but then you need something to…

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I am never getting a handicap van

I am never getting a handicap van

So I had to take my mom and my stepdad to the airport yesterday. We were driving my black Honda Civic two door. His name is Bob. I name all my cars.  Everybody was trying to tell me you should not get a two door car, you have too many devices that need to go in the car for your MS. They were all right. I really should not of gotten a two door car. However he’s so beautiful and sexy,…

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Me and multiple sclerosis continued

Me and multiple sclerosis continued

I’m sitting here with six exercises left of my P90X routine. Fuming actually that I haven’t been able to continue to finish the last six exercises.  This is certainly a first!!!!! I really just want to say go to hell MS.  This is such a sucky disease of times. It’s not bad enough that it takes a lot to muster the energy to exercise for any given person but an MS person its more of a push. I’m sitting here…

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Counting spoons

Counting spoons

I’ve been up since 4am, listening to old episodes of Cheers, while I laid in bed praying I’d fall back asleep. Even Zoey and Marshy were snoring away, but not me, I just laid there, hour after hour. I finally gave up at around 7:30 and made coffee. I start each day with a certain amount of steam in me that fizzles as the day goes on. How much steam I start with can vary everyday. I read on a…

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My multiple sclerosis affects everyone

My multiple sclerosis affects everyone

I’ve written blogs about this in the past, my daughter at 17 takes on the bulk of the responsibility. It’s not something a 17-year-old signs up for, and she’s been doing it for years.  My mother takes on the brunt of the emotional side of my multiple sclerosis. Another topic of my blogs that you could find throughout. My step dad takes on the emotional backlash of what my mom takes on, breaking his heart. Plus he’s the one taking me to…

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What is a multiple sclerosis good day?

What is a multiple sclerosis good day?

What is a multiple sclerosis good day? It’s obviously different for everybody.  Everybody has different symptoms, different challenges, different feelings and different things that they deal with in their daily life. So unfortunately, I can’t speak for everybody, I can only give my opinion. I want to say that I feel that anybody that has been diagnosed with multiple sclerosis is a warrior.  If you’re newly diagnosed, and you’ve come through your relapse, you might have come off the battlefield, for now….

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