Since I was in the hospital, this is one of the pills that has changed. First it never made my weekly pill box, which was just a complete oversight. Second, the hospital doesn’t give that out. So I must say I haven’t correctly taken my high dose biotin for a week. It occurred to me, this morning, that this could be the reason I’m having difficulties regulating my body temperature since about Saturday. I finally started taking it again 3…
I almost forgot this fact, well slightly forgot this fact. However my multiple sclerosis let me know it is still here in abundance. I got that crazy symptoms yesterday where I couldn’t regulate my body temperature. I’m sitting on my chair inches away from the AC and sweating. Sweat was literally dripping down my neck. Why? I wasn’t even moving. Normally this happens after I eat maybe something a little hot, this time it happened for no apparent reason. Guess…
I’m happy to report I was discharged from the hospital last night. One thing I know, from my career working in nursing homes, hospitals like to discharge on Friday to make room for the weekend influx. The infection disease doctor would have held me to today but I really wanted to go and the main doctor was for it. So what did I learn from this? First of all this happened from a simple fall. The fall gave me a…
I went to my friends house yesterday for an impromptu get together for the Fourth of July. It was extremely hot which I know is difficult for me with MS. However, I really wanted to go at least for a little while. I would’ve been fine in the heat if it wasn’t for my bladder. For some reason yesterday, I had to pee every hour. Not that that’s the worst thing in the world, except she has steps. I had…
I hate being this person. I hate making the decisions and choices and saying No to things because “I don’t feel good”. I’m use to all this garbage but I still hate it. I got a long week coming up. And I just haven’t been feeling great. I canceled a lot of stuff over the last two weeks and I’m happy to say that at least I could. I’m lucky that I’m in the position and I have the option…
I have a label. Not really the label I would’ve liked, but it’s mine. For the one or two times I’ve been in the emergency room I have the bracelet labeling me a fall risk. On my nursing assessment I’m labeled a fall risk. My recent aid agency evaluation I have bright neon yellow stickers on all my papers. I’m a fall risk and I have the cuts and bruises to prove it. I’m always bruised somewhere, usually my knees…
Well some of the fatigue in my arms has lifted, thankfully. I slept for 11 hours last night. Considering most days I sleep about 8-9 hours, I’m not usually lacking in the sleep department. I guess I still needed it. I probably could have slept longer but the phone rang. I had the worst spasm in my leg yesterday. It took a few minutes for the muscles to relax so I could get my leg to lower back down. It…
If I had a dollar for every time someone said to me, “feel better soon” when they see me walking. People see that I’m young and assume I just hurt myself or had some sort of surgery. It’s hard for them to imagine that this is how it is everyday. Unfortunately, I have MS, there is no feeling better soon. I’ve felt good, at least relative to how good I could feel with my disease. I attribute it to my…
It’s official, today I renewed my blog’s domain name for another two years. This also renewed my iPage contract that my blog is hosted through. I made my commitment to my blog, to my readers and to myself. That means I’m going to be around every day for another two years. I have to admit, I’ve been a little lazy with this blog. I haven’t put much effort in lately. It wasn’t done on purpose, it was just a tough…
Yesterday was a tough one. From the moment I woke up, to the moment I went to bed. I even slept for 12 hours. It started first thing in the morning, I fell almost to soon as I got out of bed. The spasticity in my body was at an all time high. I really wanted to take a second neurontin, but I know that can make me very loopy and would make my walking even harder. Since I was…
