Multiple Sclerosis has a lot of false information out there. Today I felt like talking about the Myths vs the facts of MS. I got this from Youdontknowjackaboutms.com. My thoughts are written in red. MYTH: MOST PEOPLE WITH MS ARE DIAGNOSED AT AN ADVANCED AGE. FACT: Most people are diagnosed with MS between the ages of 20 and 50. Though less common, MS can also appear in young children and teens, as well as much older adults. I was diagnosed…
MS fatigue one of the most difficult symptoms to explain and deal with. 80% of all MS patients deal with this at some point or another. Fatigue is way past a feeling of tired is to the point of absolute exhaustion. It’s the feeling that each limb is 100lbs heavier than it is. Just walking the few steps to a bathroom is daunting and overwhelming. It never fails you’ll be talking to a friend and you’ll say I’m tired (meaning…
Started physical therapy this week. Last time I did physical therapy for my multiple sclerosis was during my very first attack almost 19 years ago. Why? Insurance co-pays. I could never afford the co-pay to go to physical therapy twice a week, hell I couldn’t afford the co-pay once a week. I was working full time and was getting buried by my co-pay medical bills. I have multiple sclerosis so of course all my doctors are specialists which had the…
This picture hangs above my kitchen table. It was originally a gift my sister and I bought for my dad but has been with me since the day we tried to give it to him. My dad explained art doesn’t speak the same to everyone. The picture always spoke to me. I always fantasized looking at this picture. To be that wealthy, beautiful lady dancing in the rain on the beach with someone she was completely in love with. I…
I have finished my first bottle of high dose biotin. I’ve been taking a 100mg pill three times a day as the clinical studies patients were taking. My doctor felt that it was an excellent option for me to try since I am clearly progressing. She found a website www.highdosebiotin.net where you can purchase the pills without a prescription. It is slightly costly at $60 a bottle. Before I tell you my first month thoughts on it let me explain…
It’s not listed in the MS symptom book but I have issues regulating my body temperature. It happens more often then I care to admit to and usually in the morning when I go out for either brunch or breakfast. I get coffee nothing unusual and eat and it causes my body to sweat. Sometimes is only a mild thing other times I’m in a full blown sweat where my hair line is wet my clothes are wet and you’d…
I got my first infusion of Rituxan on May 29 and received the second September 16. Rituxan is technically not slated for MS as of yet however it’s counterpart Ocrelizumab is its sister that will be coming out in 2017. What this drug does is it knocks out all the B-cells one of your immune fighting cells. I’ve been on just about all of the MS therapy drugs at some point or other except for the newer ones that have…
