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Tag: ms over 10 years

My MRI epiphanies and me

My MRI epiphanies and me

I’m scheduled for an MRI today I am looking forward to it. I think I touched upon this topic one other time but since I haven’t had an MRI since I started blogging, I’m talking about it again. Why do I like going to an MRI?  I can tell you it’s not for the results. I’ve had multiple sclerosis for 19 years, the MRI’s show what they are going to show. However, I used to get them on average two…

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My multiple sclerosis affects everyone

My multiple sclerosis affects everyone

I’ve written blogs about this in the past, my daughter at 17 takes on the bulk of the responsibility. It’s not something a 17-year-old signs up for, and she’s been doing it for years.  My mother takes on the brunt of the emotional side of my multiple sclerosis. Another topic of my blogs that you could find throughout. My step dad takes on the emotional backlash of what my mom takes on, breaking his heart. Plus he’s the one taking me to…

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Good morning Monday

Good morning Monday

it’s the beginning of another week. Kind of strange when you don’t work because you’re weeks don’t normally run like a workday week. However every Monday is physical therapy and my daughter is back to school so I still consider it the start of the week.  March is my last month of physical therapy, then it becomes a self-pay. They run a really great program called strive. You pay a monthly fee and you can use the gym and equipment…

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Who wants to date someone with multiple sclerosis?

Who wants to date someone with multiple sclerosis?

I’m afraid to date.  I’m afraid to be rejected again. I’m afraid to be hurt again. I’m afraid to fall in love again. I’m afraid of the pain. I’m afraid to have to explain the embarrassing MS symptoms again.  I’m afraid of the embarrassment again. I’m afraid of the anxiety again. I’m even afraid of the excitement of it again. I’m afraid of the hope of it again.  I’m afraid of the beginning, the middle, and the end. I’m just…

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Dating with Multiple Sclerosis, when I’m ready

Dating with Multiple Sclerosis, when I’m ready

For the first time at probably two months I answered someone on match.com. I’m still under the same feeling that I don’t want to date, so I don’t really know why I reply, but her did.  The conversation went back-and-forth for a bit and then I asked the question; did you actually read my profile, are you aware that I have a mess and I use a walker? Silence!!! I can’t say that I didn’t purposely say that for a…

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What is a multiple sclerosis good day?

What is a multiple sclerosis good day?

What is a multiple sclerosis good day? It’s obviously different for everybody.  Everybody has different symptoms, different challenges, different feelings and different things that they deal with in their daily life. So unfortunately, I can’t speak for everybody, I can only give my opinion. I want to say that I feel that anybody that has been diagnosed with multiple sclerosis is a warrior.  If you’re newly diagnosed, and you’ve come through your relapse, you might have come off the battlefield, for now….

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This is secondary progressive MS

This is secondary progressive MS

I said in previous posts something was brewing with my MS lately, and unfortunately it still is. A quick note to my mom, if your about to read this, while in your hut, on a beautiful beach,on your vacation, I’m fine. I’m doing what I always do, accept, adjust, adapt. Well things aren’t so great MS wise, I wish I can say they were. Sometimes I wonder, did things get worse because I stopped working? Was that constant push on…

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Migraines with multiple sclerosis

Migraines with multiple sclerosis

This is the strangest topic with multiple sclerosis because migraines themselves are a very tough thing to medically see and explain. Migraines don’t show up on any MRI, blood work or Cat Scan. Doctor’s go solely on the patients account of the symptoms. The National Multiple Sclerosis Societyhttp://www.nationalmssociety.org/Symptoms-Diagnosis/MS-Symptoms/Headache  says this about headaches: Although headache is not a common symptom of MS, some reports suggest that people with MS have an increased incidence of certain types of headache. One report noted…

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Butternut Squash Mac n Cheese Sauce and black cherry sauce

Butternut Squash Mac n Cheese Sauce and black cherry sauce

I know another recipe, but you have to understand… I don’t cook!!!! This is a really big deal for me.  I’ve become a cooking queen. Ok maybe not a queen but a really eager learner. I’m enjoying trying these new things being vegan.  I’m sure vegans out there have made recipes like this thousands of times. I haven’t really cooked in about 10 years. My not cooking had really nothing to do with my multiple sclerosis. Back then it wasn’t…

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