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Tag: Ms progression

My magic button is broken

My magic button is broken

I’ve been chilling in my room as work has begun in my kitchen/living room area. Making things more handicap accessible. Hopefully I will hit less walls with the additional space but I make no promises. Let’s be honest here, my wheelchair driving hasn’t improved. I’m actually waiting once again on a wheelchair repair. This is on the button that was placed on the side that immediately lifted the chair up. My magic button that has been a true lifesaver. I’ve…

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Bladder Hesitancy

Bladder Hesitancy

I’ve written so many blogs about my numerous “accidents” but I never discuss the other way. I actually experience both of them which is why Botox wasn’t an option for me. I dealt with hesitancy long before I dealt with the urgency and the accidents. What is urinary hesitancy mean? If you have trouble starting to urinate or maintaining urine flow, you may have urinary hesitancy. If you ever experienced hesitancy you know how it feels. Your bladder is full,…

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Multiple Experiences is on vacation

Multiple Experiences is on vacation

I have to be honest, I’m not sure I still want to blog anymore. I have had this feeling once before over a year ago. https://multipleexperiences.org/2020/01/18/do-i-continue-to-blog/. At that time I realized I still loved writing about my life daily. I have poured my heart out in so many of these posts. I’ve shared every bad day and every embarrassing MS moment I deal with daily on the pages of multiple experiences. My stories are getting repetitive. I’m running out of…

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I’m feeling ok, another infusion in the past

I’m feeling ok, another infusion in the past

It is beautiful out although slightly chilly. That doesn’t stop me from opening windows to let some fresh air through. I don’t mind the chill, it feels nice because the sun is hitting this side of the building. Once the sun starts to move I will start to freeze. The temperature is only 46 degrees out, not really windows open weather. It’s that sun hitting so directly that adds so much heat. It feels really nice. I’ve been feeling pretty…

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Multiple sclerosis isn’t just my diagnosis

Multiple sclerosis isn’t just my diagnosis

I’m thankfully doing better today because I slept. Never under estimate the power of a good nights sleep. I was able to exercise a little this morning. I purposely decided to keep it simple and just do my MS gym exercises. There was an entire revamping of the MS gym and I actually started the from the very beginning again. That means the exercises aren’t as intense. I was pairing them with chair cardio everyday but knew that wouldn’t be…

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New programs at The MS Gym

New programs at The MS Gym

The MS gym rolled out a brand new site and program yesterday. Based on the new program and functional maps, I was supposed to go back to the beginning again. I just completed the standing strong program. Even though I completed the program, I would have repeated the phases because I was far from mastering the exercises. I have been with the gym for about a year now and I have done each program according to the old functional maps….

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When did it change???

When did it change???

I woke up this morning asking myself this very question. My disability has changed so subtly but so profoundly over the 3 years I’ve been just living in my condo. I specifically remember if I’d fall I’d have to crawl to a piece of furniture to help get myself up. This chair was a major assistance piece. It was the closest furniture from the kitchen or bathroom and I used it so often to aid me back to standing. Never…

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I did it!!!

I did it!!!

Sure the goal is for me not to end up on the floor but let’s be real, it is going to happen. To be able to get myself up off the floor is a big deal. Especially since not even a week ago I was in the exact same predicament and I couldn’t get up. I had to wait for my aide. Once again on the floor. Not yesterday, I learned from my prior week struggle I was in my…

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Once again on the floor

Once again on the floor

Well unfortunately I had a tough morning. It seems my stomach is still having issues. I had to shower upon waking up this morning. I wish I knew what was causing all of this unsettling in my belly over the last few weeks. I’m scared to take anything because the fear of it binding and I experiencing the alternative is just as bad. However this leads me to make many trips necessary and unnecessary to the bathroom in fear of…

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Better out than in

Better out than in

I had quite a few “accidents” this week. It seems my body likes to be either bound up or flowing free. I have yet to master a medium ground. Frustrating as it was, I figured at least I’d have a weight loss this week but even that wasn’t so. Oh well at least that has a medium ground it hovers around on. It got me thinking about when some of these issues first started showing up. I realized how long…

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