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Tag: ms relapse

Numbness in the hands

Numbness in the hands

I’m hanging with the puppies again Look I even included a makeup free version of myself. I just had my hair done yesterday so I must say the color looks fabulous though my hair needs a little straightening help. However my sweet ZoZo looks very cute on my shoulder and I had to show the picture. That’s where she loves to sleep. Marshy is sprawled across my lap. This is most mornings for me when I’m writing my blog. I…

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My 20 year anniversary with multiple sclerosis

My 20 year anniversary with multiple sclerosis

It just dawned on me, that February 14 was my 20 year anniversary with MS. It was the weekend of February 14 that I was moving it to my house with my ex-husband. My left leg started to feel numb. The numbness started traveling up my leg through my muscles. I wasn’t just numb, my muscles were becoming week and atrophied. It was The following Friday I went to a family doctor who sent me immediately to this neurologist. To…

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Disease Modifying Therapies in MS, do you take them?

Disease Modifying Therapies in MS, do you take them?

I received a comment yesterday, on an older blog, about my Ocrevus infusion. What I found interesting is she’s had multiple sclerosis for 36 years and she’s first going on a disease modifying therapy. First of all I have to say, 36 years within any DMT, that is amazing!!! I know other people like that or that have stopped taking any of the disease modifying therapy drugs for a variety of reasons. I never had that option. My multiple sclerosis…

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Ocrevus infusion not looking good for Monday due to insurance

Ocrevus infusion not looking good for Monday due to insurance

Can you sue an insurance company for stress? I know you can sue debt collectors if their actions cause undue stress. I was wondering about insurance. The stress that I’ve been under for this last week dealing with my insurance is ridiculous. Everyday I speak to them I get a different answer. Yesterday I was told they were waiting for clinical notes and a copy of my last MRI showings I have relapse remitting MS. I can understand if this…

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The only thing you control in a chronic illness

The only thing you control in a chronic illness

I was diagnosed with MS in 1998. That was over 19 years ago. It’s 42.2% of my life. That’s a long time. There’s only one sure thing with a chronic disease, it holds true with any situation, the only part fully in your control is Your attitude Yes, you could eat right, take the medicine as directed, exercise, not smoke, and not do drugs, these are all wonderful things that may slow down a disease, but it won’t cure one….

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Dizzy when I stand up….

Dizzy when I stand up….

Have you ever stood up and got dizzy? “Dizziness or light-headedness when standing up occurs as a result of abnormal blood pressure regulation. Normally, when people stand, gravity causes blood to pool in the veins of the legs and trunk. This pooling lowers the blood pressure and the amount of blood the heart pumps to the brain.” Unfortunately this happens to me more often then I’d like to admit. I remember 3 specific scary stories that were really severe, although…

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Multiple sclerosis symptoms in my head?

Multiple sclerosis symptoms in my head?

My doctor called yesterday because she received part of the results of my MRI. Turns out I have a bulging disc in my neck area on the right side. I at first thought, oh, that maybe could explain the tendonitis I’m having in my shoulder but that’s my left side. Unless they consider the right side when they are viewing in front of you in which case their right is my left. Then my doctor said maybe that could explain some…

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Good morning Monday

Good morning Monday

it’s the beginning of another week. Kind of strange when you don’t work because you’re weeks don’t normally run like a workday week. However every Monday is physical therapy and my daughter is back to school so I still consider it the start of the week.  March is my last month of physical therapy, then it becomes a self-pay. They run a really great program called strive. You pay a monthly fee and you can use the gym and equipment…

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This is secondary progressive MS

This is secondary progressive MS

I said in previous posts something was brewing with my MS lately, and unfortunately it still is. A quick note to my mom, if your about to read this, while in your hut, on a beautiful beach,on your vacation, I’m fine. I’m doing what I always do, accept, adjust, adapt. Well things aren’t so great MS wise, I wish I can say they were. Sometimes I wonder, did things get worse because I stopped working? Was that constant push on…

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Migraines with multiple sclerosis

Migraines with multiple sclerosis

This is the strangest topic with multiple sclerosis because migraines themselves are a very tough thing to medically see and explain. Migraines don’t show up on any MRI, blood work or Cat Scan. Doctor’s go solely on the patients account of the symptoms. The National Multiple Sclerosis Societyhttp://www.nationalmssociety.org/Symptoms-Diagnosis/MS-Symptoms/Headache  says this about headaches: Although headache is not a common symptom of MS, some reports suggest that people with MS have an increased incidence of certain types of headache. One report noted…

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