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Multiple sclerosis relapses and disease modified therapies

Multiple sclerosis relapses and disease modified therapies

I was talking this morning to my step sister about MS attacks or relapses if you choose. We were talking about someone undiagnosed for years therefore not on any MS disease modification medicine. I told her how lucky I was that I was quickly diagnosed but more so that way back then there was ANY medicine for MS. I strongly believe that if I wasn’t on some kind of medicine I would have been completely disabled within a window of…

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New Multiple Sclerosis Culprit Identified-B-cells and T-cells in MS Medical News Today

New Multiple Sclerosis Culprit Identified-B-cells and T-cells in MS Medical News Today

https://www.medicalnewstoday.com/articles/323006.php New multiple sclerosis culprit identified It is still unclear what causes multiple sclerosis, but new research closes in on the faulty immune system mechanisms involved in the development of this condition. New research has identified another type of immune cell that may play a role in MS. Multiple sclerosis (MS), which is an autoimmune disease, causes the immune system to mistakenly attack myelin. Myelin is the substance that coats axons, which are the projections that allow neurons to connect…

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Self-love day 6- Doctors, doctors and more doctors

Self-love day 6- Doctors, doctors and more doctors

I’ve been eating right, exercising and going to the doctor as needed. A few weeks ago I saw my specialist for MS. I’ve been seeing a podiatrist for the fungus and the swelling blisters on my toes. Today I’m off to the vascular doctor to discuss the swelling in the extremities and see if I can get any answer to that. Then I have to make the decision if I want to go to the endocrinologist and go further to…

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No questions for my neurologist

No questions for my neurologist

My mother sent me a text yesterday to write down the questions I have for the neurologist. It’s been 20 years, what questions do I still have for the neurologist? I know the research, I know what’s out there and I know what I’m on. Unfortunately, there is nothing for secondary progressive and therefore there is nothing that will stop the MS progression at this point. I’m very positive, but I’m also a realist. I’m not gonna run around with…

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Is it Ocrevus?

Is it Ocrevus?

Two amazing things happened over the last two days that I have to tell you about. Yesterday I actually swam in the pool. I do the shorter side of the pool as opposed to the length for safety reasons. My poor aid doesn’t want to have to deal with jumping in and trying to save me where I can’t touch the bottom. There I was, back and forth and back-and-forth for almost a full half an hour in the pool….

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Multiple Sclerosis drugs, vitamins and therapies

Multiple Sclerosis drugs, vitamins and therapies

I kicked ass this morning. New workout and I stood on my feet for a record of 18 minutes. Omg!!! That’s incredible. Granted my feet can’t move too much, but that’s ok, that was an tremendous amount of time. In physical therapy, one of the main things they do for people with multiple sclerosis, or people that can’t really stand on their own anymore, is put them in a device that either stand them up or strap them in bars…

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Biotin, dating, Ocrevus and me

Biotin, dating, Ocrevus and me

It’s been a strange couple of days. I’m finally able to start taking my high dose biotin again. If you read any of my other threads on biotin, and there are many, what mostly showed in the biotin is that my walking speed increased by seven seconds. This is according to my neurological test by my doctor. However I’ve stated, and I still stand by, that biotin helped do more. Besides noticing more weakness in my legs and hip area,…

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Not a smooth transition to Ocrevus

Not a smooth transition to Ocrevus

OCREVUS (Ocrelizumab) is the new approved drug for the treatment of patients with relapsing or primary progressive forms of multiple sclerosis.  I’ve been on Rituxan, the sister drug to Ocrevus, for over a year. The comparison on the drugs is mostly illustrated in my blog post here… I made the error thinking same company, basically same drug, easy transition….NOT!!! Last Friday I found out that my infusion place that I was receiving the Rituxan from, WILL NOT be doing Ocrevus…

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My current list of medications for my MS

My current list of medications for my MS

With any chronic Illness, I think our medicine cabinet becomes a small pharmacy. I thought I’d give a list of what I am taking for my multiple sclerosis, the dosage and the reason. I’ve included links to my other posts if I have information that I thought was useful on a particular drug or vitamin. This post is an added plus for me. I can print and give to doctors instead of rewriting each drug I take on their medical…

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Multiple sclerosis past, present and future

Multiple sclerosis past, present and future

I’m a very big fan of Flipboard . I use it a lot,  I post my blog, I read articles and I find recipes. I save all my recipes in a magazine, you could click on my recipe magazine right down the side of this blog. Yesterday I came across a great article about The Story of Multiple Sclerosis and It’s Major Milestones http://flip.it/udMksk. I just want to highlight the milestones. 1824 1st clinical description of multiple sclerosis 1868 Multiple sclerosis…

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