I AM SO TIRED I AM TIRED OF BEING BRAVE I AM TIRED OF PRETENDING IM NOT SCARED I AM TIRED OF TAKING A SHOWER AND LOSING EVERY OUNCE OF ENERGY I HAVE IN MY BODY I AM TIRED OF DOING THE RIGHT THING AND IT STILL BITING ME IN THE ASS I AM TIRED OF ALWAYS TRYING TO BE POSITIVE ALL THE TIME I AM TIRED PRETENDING I DONT HATE YOU I AM TIRED OF BEING ALONE IN MY…
Valentine’s Day weekend, 19 years ago, I was moving into the house my ex-husband and I just bought. Actually we bought the house back in December but we did work on the house so we didn’t officially move in until Valentine’s Day weekend. It was supposed to be a romantic thing first weekend in the house. I started having difficulty walking that weekend. Boxes and more boxes throughout the house. Furniture deliveries coming throughout the day that Saturday. I’m sure…
I had a Bar Mitzvah yesterday. That’s when a boy (Bat Mitzvah for a girl) turns 13 and becomes an adult in the Jewish religion. It was my 1st cousins son’s event. I was at her Bat Mitzvah 28 years before. Ok that’s one way to put the whole age thing into perspective. Dressing in simple clothes is overwhelming adding the fancy outfit and full make up…Well I gave myself plenty of time to work in stages to hopefully prevent…
As multiple sclerosis progresses, so does your assistive needs. The first thing I got was the handicap parking permit. I’ve had this for many, many years. I got this early in my disease when I use to work in NYC and had to take a train. The parking at the station was insane and even back then walking that long distance in a rush to catch a train was very difficult. I was never able to run or skip again…
Anyone that knows me knows I don’t cook. I just don’t like it but I know my way around the kitchen. As my multiple sclerosis worsened cooking became even more difficult. I have limited time I can stand on my feet, over a stove or cook top. I also have limited time I can cut and chop before my hands fatigue. Many times I will prepare a dish only to not be able to eat because my hands literally cannot…
My life coach says I’m in a growth stage and not wanting to date is perfectly ok. I must admit, originally I thought I’d take a few weeks, a month off, then Boomer, my beloved English Bulldog died. In that grieving time, besides bonding and training a new puppy, I also got to a very good place in A Course in Miracles. I just felt good being alone. It wasn’t a matter of the multiple sclerosis, although that will always…
Anyone with a chronic disease can tell you that those 4 little words, “you don’t look sick”, is enough to drive them crazy on the spot. I’ve written many blogs about symptoms of multiple sclerosis you’d never see. https://multipleexperiences.org/2017/01/23/multiple-sclerosis-serious-symptoms-respitory-issues/ https://multipleexperiences.org/2016/12/04/multiple-sclerosis-silent-symptoms/ https://multipleexperiences.org/2016/11/28/lets-talk-about-sex-and-multiple-sclerosis/ https://multipleexperiences.org/2016/08/05/im-not-tired-im-fatigued/ Multiple Sclerosis, especially in the beginning, can look silent at first. For the first 8-10 years I had barely a limp when I walked. I would fatigue if I walked too much and by too much I mean…
I had the best physical therapy session ever!!! Just one of those days where my legs were super strong and didn’t fatigue to the point I couldn’t walk, like they normally do. I even had enough energy to get to the food store. I needed a few ingredients make my favorite soup. Thought I’d do something different today and share a plant-based vegan soup recipe. I was just so happy how well today went I also had to share my…
It’s 7:00am and I hear the quiet whimpers from Zoey who is awake and ready to start the day. Ugh one of the downsides to a puppy, up early. She is doing so great considering the second day with her I was in hysterics saying “I can’t do this I need to give her back.” Well we are still battling with Giardia but I’m pretty sure my Marshy is better. But this puppy, this puppy is super fast. She consumed…
I was driving and my iPod was shuffled playing random songs from my entire music collection. My favorite things when driving were music and smoking. I could drive for hours smoking with the music cranking, loud. I quit smoking years ago for the final time. I didn’t wait for the last cigarette of the pack, I didn’t even throw out what was left of the pack. I woke up one day and said enough. I can’t smoke anymore. It messed…
