Actually I’m pretty sure my thumb, in the gardening world, has been injected with plant poison. Can’t blame this on my multiple sclerosis. I have managed to kill every plant I owned, which even includes cacti, except for one…meet Droopy This plant was given to my husband when he opened a Cold Stone Creamery in Glen Cove about 13 years ago. The store is gone, the husband is gone, but Droopy remains. The ONLY reason this plant has not been…
At my neurologist appointment she wanted me to start taking Alpha Lipoic acid 1200mg a day. She explained that like the biotin study I talked about https://multipleexperiences.org/2016/10/24/high-dose-biotin-with-progressive-ms-a-patients-review/ It was shown to help patients with secondary progressive multiple sclerosis. The vitamin is inexpensive. I got a bottle of 600mg on Amazon for $14.99. I take 2 a day. I just started yesterday. Like anything I will keep you updated to anything I’ve noticed both good and bad with my own MS symptoms. I…
It wasn’t difficult to not eat meat AT ALL. I didn’t miss it or crave it in the least. My most difficult obstacle was my coffee. Even being on weight watchers 99.9% of my life, I used half n half. I drank coffee very light. I had to give that up. Vegan is no dairy, no meat. I looked online and got a recipe for a can of coconut milk combined with almond milk, both unsweetened, mix them together and…
I have 2 neurologists. One is a straight neurologist who diagnosed me 18+ years ago and has been with me since. The other is a multiple sclerosis specialist in New York City who I’ve been seeing for about 2-3 years now. Both of them work on different aspects of my MS. My neurologist is usually the symptoms manager. He prescribes the daily drugs I take. The specialist deals with which MS drug I’m on. The blood work, MRI scans and…
Multiple Sclerosis has a lot of false information out there. Today I felt like talking about the Myths vs the facts of MS. I got this from Youdontknowjackaboutms.com. My thoughts are written in red. MYTH: MOST PEOPLE WITH MS ARE DIAGNOSED AT AN ADVANCED AGE. FACT: Most people are diagnosed with MS between the ages of 20 and 50. Though less common, MS can also appear in young children and teens, as well as much older adults. I was diagnosed…
I was a good teenager, in realations to other teenagers. I didn’t do hardcore drugs. I didn’t break curfew. I didn’t steal. I wasn’t arrested. I helped around the house as needed. I liked my parents. I liked spending time with my parents. I became rebellious the summer I was leaving for college. I could smell the freedom. I can smell the beginning of something new. I could feel the start of my life. I hated high school. I didn’t…
MS fatigue one of the most difficult symptoms to explain and deal with. 80% of all MS patients deal with this at some point or another. Fatigue is way past a feeling of tired is to the point of absolute exhaustion. It’s the feeling that each limb is 100lbs heavier than it is. Just walking the few steps to a bathroom is daunting and overwhelming. It never fails you’ll be talking to a friend and you’ll say I’m tired (meaning…
As with most of my blog, this too has a back story. About 4 years ago, in the middle of the night I heard my daughter doing something in the bathroom. I remember talking to her and then I remember being on the floor holding my head as blood was dripping down. I remember saying “call grandma”. Since the day I got diagnosed with multiple sclerosis, if a call came in the middle of the night it was never a…
Im not tech savvy enough so I hope you can click on the picture to see the stats from my blog yesterday. This is my actual back door stats I look at everyday. My mom laughs at me because the truth is, and she is not wrong, who cares? I write this blog for me. It’s not set up for money making where the subscribers count. Yet I’m obsessed with how the numbers are daily and if my blog is…
Starting Saturday I will be following a plant based diet. Why Saturday? One of my birthday gifts from my sister and brother-in-law was a gift certificate to Terra Kitchen. They are a home delivery food company that sends the ingredients and you put the meal together. The difference is they cut the ingredients for you which for me is tremendous because I can’t do that anymore. My first delivery is Saturday. I also ordered from Veestro the 21 day kick…
