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Tag: Multiple sclerosis

High dose biotin with progressive MS a patient’s review

High dose biotin with progressive MS a patient’s review

I have finished my first bottle of high dose biotin.  I’ve been taking a 100mg pill three times a day as the clinical studies patients were taking.  My doctor felt that it was an excellent option for me to try since I am clearly progressing. She found a website www.highdosebiotin.net where you can purchase the pills without a prescription. It is slightly costly at $60 a bottle. Before I tell you my first month thoughts on it let me explain…

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My perfect Sunday

My perfect Sunday

Its Sunday today and I’m spending the day with my family. We are getting ready to go out for a scrumptious breakfast to start our day. To a place that I’m promised the pancakes are fluffy and stacked really high. Then we are going to take a little ride to find a nice town to walk around in and just shop. Take in the beautiful fall day spending time with each other. Then I’ll come home and spend a nice…

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Handicap parking permits

Handicap parking permits

In New York, you don’t need much to get a permit for handicap parking. I got my first handicap parking permit when I was working in NYC for the parking at the train station.  It was very early in my MS years and I was relatively well at first look.  I’m sure when I used the parking permit and people saw me get out of the car there were quick judgements that I looked fine, why did I need a…

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To get a brace or not with MS

To get a brace or not with MS

For many years now my neurologist has wanted me to wear a brace on my legs. I finally gave in to this and was fitted for the brace. Why did I need a brace? Why would anyone with MS need a brace? Well there are several reasons a person might benefit from a brace let’s start with weakness of the muscles. Muscle weakness can cause a problem called foot drop where the top portion of your foot drags on the…

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Newly diagnosed with MS

Newly diagnosed with MS

If you’re newly diagnosed with MS chances are you have in the middle of coming off of having some sort of attack or relapse or whatever you want to call it where you got sick and your diagnosis was made to be MS.  At this point is usually shock. And I’m sure you come home from seeing the doctor and go right onto the Internet looking up everything you can possibly look up for MS. But let’s start at the…

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Your doctors role in multiple sclerosis

Your doctors role in multiple sclerosis

Billy Joel’s song Honesty is playing through my head right now, why? Because when it comes to your MS doctor it is the only way.  Your MS doctor is probably a neurologist of some sort maybe they’re an MS specialist maybe they’re not, but whatever the doctor you need to have a special enough relationship with them that you can speak honestly. You need to be able to be really comfortable that you could say anything especially as the years go…

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Bladder problems and Multiple Sclerosis

Bladder problems and Multiple Sclerosis

Could I honestly have MS for 18 years and never discuss a symptom that will eventually effect 80% of people with MS. Let’s start with basic urology lessons of what a healthy bladder does when functioning correctly. We make urine in our kidneys that travels down two tubes called ureters to the bladder, an elastic sac that holds urine. When all is good and working right as the urine is stored the sac expands. When it expands nerves in the…

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Happy tears

Happy tears

Strange thing is been happening of the last couple of months, I cry at so many things. It started probably around the Olympics and I noticed that anytime someone would win a medal and they’d hug their coach or their parents for their teammates, I’d be so happy I’d cry with them.  OK maybe I should just clarify, I don’t cry I tear up. Sometimes just a tear or a couple of tears down the cheek for little bit, I…

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MS symptom not in the textbook

MS symptom not in the textbook

It’s not listed in the MS symptom book but I have issues regulating my body temperature. It happens more often then I care to admit to and usually in the morning when I go out for either brunch or breakfast. I get coffee nothing unusual and eat and it causes my body to sweat. Sometimes is only a mild thing other times I’m in a full blown sweat where my hair line is wet my clothes are wet and you’d…

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The Whale a story of gratitude

The Whale a story of gratitude

…The Whale… If you saw a recent front-page story of the San Francisco Chronicle, you would have read about a female humpback whale who had become entangled in a spider’s web of crab traps and lines. She was weighted down by hundreds of pounds of traps that caused her to struggle to stay afloat. She also had hundreds of yards of line rope wrapped around her body, her tail, her torso, a line tugging in her mouth. A fisherman spotted…

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