Doctors, doctors and more doctors. I have a lot of appointments coming up. Yesterday I was saw my neurologist. He’s been the doctor I’ve been with the longest, the one who diagnosed me 19+ years ago. At this stage of the game with my MS he treats me systematically. The specialist in the city treats me for my major MS drug. This is a section from a my own blog about doctor day check ups. It’s doctor day. What does that…
I wanted to write another post about Ocrelizumab (Ocrevus) the new drug approved recently by the FDA for relapsing remitting multiple sclerosis and primary progressive multiple sclerosis. I am hoping I can simplify the drug information for people here. I’m not going to go explain what relapse remitting multiple sclerosis is or primary multiple sclerosis is because I’m assuming if you’re looking for information about this drug, you either have it or someone you know has it. If you’re looking…
It’s another Monday, how did that happen? So today I was thinking, I wasn’t in the mood to blog. Then I realized I’ve blogged every day since I started the blog in July. Yes, sometimes I cheat and I put up song lyrics like yesterday, but come on Linkin Park rocks, it was meaningful. Sometimes I put up recipes but let me tell you the Vegan Oatmeal Chocolate Chip Cookies https://multipleexperiences.org/2017/04/08/vegan-oatmeal-chocolate-chip-cookies/ freaking rock, made them again yesterday. Or my highest traffic…
Let me first address the fact that it took an hour and 45 minutes to get into the city for my check up. That means I’m doing nothing for all that time. I was her first appointment that morning. When we do my neurological checks and timed walking, I’m at the best I’m going to be. Therefore the check up is based on this point. However how realistic is it? This is the first time I was her first appointment,…
It’s a rainy, foggy, and dreary day in New York. I’m a passenger in my own car. I have an early morning appointment at my neurologist in the city. Besides the basic neurological tests, we will discuss the possible switch to Ocrelizumab (Ocrevus) and my MRI results. ive already written about my bulging disk result from the spine.https://multipleexperiences.org/2017/04/01/multiple-sclerosis-symptoms-in-my-head/ My neurologist wrote me yesterday “good news, the brain MRI is stable”. It is good news, I know that. However it’s been the…
Yesterday the approval was made for Ocrelizumab for multiple sclerosis. If you don’t have access to the Internet, a newspaper , listen to the news, watch the news, have a friend, or a loved one, or possibly live under a rock, you might not of heard. This drug has been showing promise and talked about for a long time now. I’ve actually been angry at all the buzz this drug has been getting., The reason why is because I’ve been…
With any chronic Illness, I think our medicine cabinet becomes a small pharmacy. I thought I’d give a list of what I am taking for my multiple sclerosis, the dosage and the reason. I’ve included links to my other posts if I have information that I thought was useful on a particular drug or vitamin. This post is an added plus for me. I can print and give to doctors instead of rewriting each drug I take on their medical…
http://sumo.ly/moZo I submitted a link to the biotin research/clinical study that showed that it may be helpful in people with progressive forms of multiple sclerosis. I am writing from my own perspective from taking the medicine. this excerpt is from a past blog post of mind explaining what my doctor has noticed I get a 100mg pill I take 3 times a day from Ace pharmacy https://highdosebiotin.net . I just completed my 4th month somewhere in the middle of my…
Here we go again. Another battle with the insurance. After I went to through the the battle with them and filed every appeal possible for my Rituxan, I was denied. Insurance denied saying it was not approved for multiple sclerosis. Although we filed all the necessary paperwork and they did approve it for others they would not approve it on my case. What is more than frustrating and this is that the new drug that is coming out for MS,…
As expected I was extremely tired after. It’s because of the large amount of Benadryl that is given. I was in bed asleep by 9:00. I’d love to say that was unusual for me, but during the week that’s my normal bed time. I woke up with a little stomach ache. That can be a number of reasons but it is listed as a side effect of the rituxan. I don’t remember it from any of the other times I…
