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Author: Youtwohearts

A day in the life with multiple sclerosis.
Occupational therapy evaluation…OT differs from PT

Occupational therapy evaluation…OT differs from PT

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I had an OT evaluation yesterday. 0T stands for occupational therapy. The difference really between physical therapy and occupational therapy is occupational therapy deals with more fine motor skills. Physical therapy deals with more of the physical stuff. I never realized my health care covered 20 days of both therapies. I thought it was 20 days total. So this will be the first time in OT. For 13 years, I worked in a nursing home as a financial billing office…

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Happiness is….

Happiness is….

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Doing morning meditations and affirmations when I’m in that awake/sleeping state. Waking up to the faces of my dogs because that’s ALWAYS the first thing I see. Morning puppy love before I even get out of bed. Looking out my large bedroom window and seeing the water. Coffee brewing and making the house smell yummy in the AM. Finishing a 30, 45 or 60 minute exercise. Even though I’m in a chair for most of it, there is always the…

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Learning to crawl

Learning to crawl

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I don’t know how babies do it, they spend months crawling around before they walk. Unfortunately, I’ve had to learn to crawl again. It’s part of the last five months of physical therapy. Crawling forward and back every time I was there. Why? If you don’t have MS you might not know why, if you have a MS you unfortunately know why. It’s because sometimes when I’m on the floor I can’t get myself back up. This could be because…

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And so it begins…heat and MS

And so it begins…heat and MS

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There is no winning when it comes to temperatures anymore for me. I can’t handle the extreme cold and I can’t handle the extreme heat. It’s exactly 8:22 as I am writing my blog today and I have all my windows open. Currently the temperature is 65° out going up to 73°. my temperature in my house is showing 70°. That’s a little on the warm side, we’ll see what happens as the day progresses. Where I am sure I…

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A really good friendship

A really good friendship

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There are just people in my life that put a smile on my face all the time. I’m so grateful for my friends and family. I say this often and I mean it with all my heart. However, there’s one friend who just cracks me up all the time. He has the greatest sense of humor. I’ve known him since I was probably 13-14 years old. I went to both high school and college with him. I think, actually I…

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My bedroom equipment

My bedroom equipment

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My accessory equipment, is far from limited to walking. I’ve been having problems in the bedroom to, and I’m not talking about sex. I’ve been having issues getting on my bed because I can’t get my knee high enough to get myself on. It’s also too high for me to just sit down and get on like that. That’s not all!!! I can’t sit up in the bed, because my core muscles are becoming less and less existent. This creates…

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An autobiography in 5 chapters by Portia Nelson

An autobiography in 5 chapters by Portia Nelson

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This was sent to me by my sister over two years ago when I started on my path of self-discovery and spiritual understanding. At first I didn’t quite understand the meaning until I started to understand myself, my actions and more importantly my thoughts. As I myself heal this poem became clearer and clearer to me. It’s one of those poems that are saved in my favorites in my phone and on my computer because every now and then I…

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Multiple sclerosis swallowing and respiratory issues

Multiple sclerosis swallowing and respiratory issues

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I’d like to pretend this isn’t really happening. It’s much easier to live in ignorance. However, I’ve been noticing this symptom coming up more often than I’d like to see it. When I’m having dinner and it can be fish, beans, or rice, Sometimes the food doesn’t get all the way down my throat when I swallow. I almost have to drink a little water to push it down. It’s just almost feels like the food builds up and it’s…

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Disability help in the college setting

Disability help in the college setting

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The decisions been made, my daughter is going away to school. She decided on the University of Albany. Actually we could be technical and say State University of New York at Albany. It’s a state school, but it’s a good school. The criminal justice program is the second best program in the entire country. She’ll need a 3.2 to get into the program. She’ll have her work cut out for her, but that’s what she wants. Mikayla, my daughter, is…

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A crazy story

A crazy story

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My stepdad, mom and daughter were having dinner last night. When they came out of the restaurant, there was a note on my mom’s car from a Good Samaritan who saw my moms car get hit and the person leaving the scene. My mother just got a new car not even a month ago. She went to the back of the car and it was all banged up. The note had the license plate and the make of the car….

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