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Author: Youtwohearts

A day in the life with multiple sclerosis.
Sometimes you have to laugh

Sometimes you have to laugh

Well sometimes my MS issues lead to funny outcomes. I got my mom to bake Mandel Bread. These are cookies very similar to biscottis. It is one of those recipes passed down through the family for a long time. It use to be so hard to get the dough mixed so we never made them often. Then mom got this great mixer and she can make them in record time. After she cleaned every closet and draw in the house…

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My obsession with Formula 1 and a whole history lesson

My obsession with Formula 1 and a whole history lesson

Still loving my Formula 1 racing. I think I’ve watched every documentary I could get on Netflix, Amazon and Hulu. I haven’t even started on the docs on F1tv because I wanted to learn about F1 history before I started on each individual legend. Wow these men driving in the 50’s, 60’s and 70’s were truly insane and so were the accidents. Thankfully drivers like Niki Lauda and Jackie Stewart started pushing for some safety reforms on these tracks. It’s…

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Learning by being the teacher

Learning by being the teacher

With so many parents being the teachers now, I think many parents are forced to learn again. Learning math, English, science and social studies but most of all learning how hard it is to be a teacher. Many parents will have a new found appreciation for the people that teach their children when schools reopen, as they should. I’ve listen to my aid spend hours helping her son with his work. A sweet kid but he’s 7 and is easily…

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I really need to get a license to drive my wheelchair

I really need to get a license to drive my wheelchair

It really isn’t ALL my fault. You see these are the tires of my wheelchair Those big ones up front give the wheelchair the power but the tiny ones in the back give the direction. I can’t see them and if they are pointed one way and I hit the directional another way, that doesn’t mean I’m going the way I want to go. I’m going the way those tires in the back are pointing first. They steer the wheelchair….

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Secondary Progressive Multiple Sclerosis

Secondary Progressive Multiple Sclerosis

For my wheelchair evaluation, I’m going out…my wheelchair evaluation my neurologist needed to submit a letter of need. Due to the coronavirus, we did this via teleconference the second week of April. He’s been my neurologist for 22 years. He has files upon files upon files on May. We laugh, actually, at how many times my files have been thinned and moved to storage. My file still always remain as thick as medical encyclopedia. I explain this so you know…

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Buzzing noise in my ears

Buzzing noise in my ears

I’ve realized something over the last few months, I never have quiet. My ears always have what I can only describe as a buzzing sound in them. I know, sounds like tinnitus, but it’s not ringing. Not only is it it not ringing, I hear fine, it doesn’t bother me or throw me off balance and it isn’t loud or annoying. I’ve just noticed the sound is always there. I’m not sure when I started noticing it but I know…

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Hot, sweaty, cold and warm

Hot, sweaty, cold and warm

I’ve had so many blogs about this topic. Regulating my body temperature is not going well these days. It can be very frustrating. The sweating happens a lot after i eat. It is because my food is hot. The hot food causes my body temperature to rise and then I start sweating. Really makes no sense. Most normal people eat a hot meal and don’t have any issues. Not me, I eat, I get overheated. WTF!!! It happens all the…

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Migraines, prescriptions , migraines and more prescriptions

Migraines, prescriptions , migraines and more prescriptions

I have been fighting migraines since Saturday. During my teleconference with my neurologist he informed me that my insurance company was no longer going to cover my Relpax prescription. These are the pills I take when a migraine gets really bad. My prescription fills at 6 pills per month under the generic version Eletriptan. They gave my doctor two other options to try. The first one he gave me was Rizatriptan. A dissolvable pill that you place on your tongue….

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I’m not disabled, I’m mom

I’m not disabled, I’m mom

I did well yesterday My words are my actions. I managed to use the walker until after 2pm. I completed 3 sets of 10 squats but I can admit I pulled myself up on the last few. I was done!!! I’m happy to say that I recovered and had strength to get myself up into my bed without assistance and without lowering the bed to the flat position. I was proud of myself. My daughter comes into my room every…

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My words are my actions

My words are my actions

One thing I can say about myself is I’m not a slacker. If I say I’m going to do something, I’m going to do it. I wrote about my weakness in my legs the other day My muscles are getting weaker. In the blog I realized I had to do something. So I first thought on safety. I can’t fatigue myself to the point I can’t transfer. My daughter has been so helpful when my aid isn’t around but she’s…

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