I saw this somewhere in the midst of the virus outbreak and have wondered about it ever since. If I have an overactive immune system why am I in such a quarantine from this virus? According to my neurologist, it is because of Rituxan. I take a medication that wipes out a strain of my white blood cells. I can understand that. It makes sense. It was another blogger who made the comment that they very rarely get sick. It…
I’m not sure what exactly is going on with my bladder these days. I know I have issues, had them for years, but they’ve seemed somewhat worse over the last few weeks. I am not sure if I don’t have some kind of bladder infection. The problem is that is varies day to day, something bladder infection tend not to do. However between my water pills and Toviaz, who knows. Urinary tract infections don’t always cause signs and symptoms, but…
I haven’t been sleeping great. I’m up all night either using the bathroom or unable to get the right temperature. However I still wake up in the morning pretty bright eyed abs chipper. Starting each morning with some puppy love helps that situation. I’ve put in some great workouts in the AM. Yesterday I did 52 minutes. That pretty intense especially since I didn’t go to bed until after 10:00. That’s when I realized that I’ve been doing really good…
I got my windows open. The sun is shining. It’s supposed to be almost 70° in New York today. The water is still so there’s no wind. I hear couple of birds chirping. I hear the seagulls which lets me know I’m by water. I know I’ll see boats today. I am just loving it. I don’t even mind seeing the bulldozer at the corner lot in my field of vision. It’s crystal clear out. I mean really, how can…
Well sometimes my MS issues lead to funny outcomes. I got my mom to bake Mandel Bread. These are cookies very similar to biscottis. It is one of those recipes passed down through the family for a long time. It use to be so hard to get the dough mixed so we never made them often. Then mom got this great mixer and she can make them in record time. After she cleaned every closet and draw in the house…
Still loving my Formula 1 racing. I think I’ve watched every documentary I could get on Netflix, Amazon and Hulu. I haven’t even started on the docs on F1tv because I wanted to learn about F1 history before I started on each individual legend. Wow these men driving in the 50’s, 60’s and 70’s were truly insane and so were the accidents. Thankfully drivers like Niki Lauda and Jackie Stewart started pushing for some safety reforms on these tracks. It’s…
With so many parents being the teachers now, I think many parents are forced to learn again. Learning math, English, science and social studies but most of all learning how hard it is to be a teacher. Many parents will have a new found appreciation for the people that teach their children when schools reopen, as they should. I’ve listen to my aid spend hours helping her son with his work. A sweet kid but he’s 7 and is easily…
It really isn’t ALL my fault. You see these are the tires of my wheelchair Those big ones up front give the wheelchair the power but the tiny ones in the back give the direction. I can’t see them and if they are pointed one way and I hit the directional another way, that doesn’t mean I’m going the way I want to go. I’m going the way those tires in the back are pointing first. They steer the wheelchair….
For my wheelchair evaluation, I’m going out…my wheelchair evaluation my neurologist needed to submit a letter of need. Due to the coronavirus, we did this via teleconference the second week of April. He’s been my neurologist for 22 years. He has files upon files upon files on May. We laugh, actually, at how many times my files have been thinned and moved to storage. My file still always remain as thick as medical encyclopedia. I explain this so you know…
