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Author: Youtwohearts

A day in the life with multiple sclerosis.
What a multiple sclerosis spasm looks like

What a multiple sclerosis spasm looks like

Last week I wrote a post about all my different spasms. My multiple sclerosis spasms. I was sitting around yesterday as my right leg was doing the one type of spasm that you could actually see. So I got it on video .img_2066-9 This is why I take so many medicines at night. If I have this spasm while I’m trying to sleep, I won’t. It does happen and incidentally I have many blogs dedicated to my lack of sleep….

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A peaceful weekend

A peaceful weekend

There are a few boats out on the water this morning. It is a still a little chilly but the sun is out. It looks beautiful. I opened windows to let the fresh air in. I just love this!!!! The pictures never do it justice. They never capture the sparkling effect the sun has on the water that I find just mesmerizing. This was better but still doesn’t do it justice. Saturday mornings are my favorite especially when the sun…

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Teleconference neurologist appointment

Teleconference neurologist appointment

I have my neurologist appointment this morning. My second neurologist appointment admits the coronavirus isolation. Once again this will be a teleconference appointment as was my other one. I’m thankful that both my doctors know me so well. What would this be like if I was a new patient or something? I can’t imagine. This appointment was always scheduled as a checkup but now it is also serving as my wheelchair evaluation. I need to be seen by my doctor,…

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The best Passover Seder

The best Passover Seder

Passover last night was one I won’t soon forget. A big thank you to my cousin Stacy and her fiancé Robby for putting it together. There were roughly 27 families connected through Zoom reading the Seder. The new normal of our everyday lives these days. I must give a hysterical shout out to the addition on the 10 plagues of the coronavirus. It was really funny. That detail and the rendition of Dayenu. For over 40 years we’ve sung that…

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How are you doing?

How are you doing?

The numbers of the coronavirus are staggering. I seem to be in the County in New York that has now reported the most cases of the virus and the number is still rising. ALERT: Coronavirus In Nassau: ‘A Staggering Number Of Deaths’ (Tue 1:34:02 PM) ALERT: Nassau Coronavirus Cases By Town: April 8 (Wed 9:27:20 AM) Cuomo: COVID-19 hospitalizations increase on LI Everyday the news is still bleak. I’ve been home for 4 weeks now going out only once I’m…

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Hot Water helped with Choking

Hot Water helped with Choking

So I took an extra triple magnesium capsule on my way to the bathroom yesterday. I can normally swallow pills without water. Comes from years of taking pills. I wasn’t able to actually swallow the capsule for some reason but I needed to use the bathroom. I left it in my mouth for the second until I could get water from the sink. I just didn’t plan on one of my rock skipping ass off the toilet bowl moves. I…

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My multiple sclerosis spasms

My multiple sclerosis spasms

My spasms have been extremely annoying lately. I have a few different types and it depends what it hitting when. My back has probably been the most frequent. It starts with this warm feeling that spreads across my back and reaches from left to right. It continues to my right hand where it paralyzed it for a second. Then I have the one in right hamstring. This one you can feel building up. It’s like you welcome the spasm when…

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Good morning

Good morning

I woke up early today. I feel good, rested and ready to start the day. I wake up every morning happy. How can I not? The first thing I see are smiles My Plakie Humpty Dumpty dolls I’ve collected all my life. They always make me feel happy. Then I have my Zoey who is cuddled up next to me. She’ll stay sleeping until she senses any movement from me and then her eyes are wide open. Marshy is usually…

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Pick up the phone

Pick up the phone

I must admit I’m not a phone person. I’m great at text but I hate holding a phone. I drop it often and I can never get a comfortable placement so I don’t have to hold it in my hands. You know how you balance it between your ear and your shoulder? I sometimes can’t do that anymore causing me to have to physically hold the phone. My family knows I put many of them on speaker phone these days….

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FDA approves Zeposia (Ozanimod) for Multiple Sclerosis

FDA approves Zeposia (Ozanimod) for Multiple Sclerosis

Amidst all that is happening in the world, things are still happening in the world of MS. Another oral medication for the treatment of MS. Read the article here: https://multiplesclerosisnewstoday.com/news-posts/2020/03/26/fda-approves-zeposia-ozanimod-oral-rrms-active-spms-cis-therapy/

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