If you have ever read my blog or not, my biggest personal growth this year was reading A Course in Miracles. It’s a book compromised of a reading section, a workbook section and a teachers manuel. I am on the workbook section now which is a lesson a day for 365 days. I start everyday reading the workbook. I’m currently on lesson 181. Like any spiritual path, A Course of Miracles is not a religion, it is a way of…
Unfortunately, I have not escaped side effect free from my Rituxan infusion on Monday. However it’s not the Rituxan that is the problem it’s the steroid, as I figured it might be. Definitely not as bad as last time but I definitely don’t feel well. So instead of a long blog I got humor this morning with my puppy Zoey that I thought I’d share. Zoey loves socks doesn’t matter if they are on your feet or not. This morning…
So once again little Zoey back at the vet. She has another respitory infection. However it is only one of the reasons she was there. My veterinarian has received at least one email a day from me for the last two weeks straight. I’ve had 2 dogs at this office for the last 10 years but it wasn’t until Zoey came along, a little over a month ago, that the ENTIRE office now knows me. On a wonderful note about…
As expected I was extremely tired after. It’s because of the large amount of Benadryl that is given. I was in bed asleep by 9:00. I’d love to say that was unusual for me, but during the week that’s my normal bed time. I woke up with a little stomach ache. That can be a number of reasons but it is listed as a side effect of the rituxan. I don’t remember it from any of the other times I…
Third time I’m being infused with Rituxan. I was able to change my infusion place back to my home town instead of NYC. Saves at least 3 hours of the day. I got here at 9am and it’s 9:57 IV is just beginning. Why an hour? Well they didn’t get the doctors orders. Now it is a federal holiday today so getting in touch with the doctor wasn’t going to be easy. Her office at Mount Sinai in NYC is…
It’s amazing how a day can turn. There comes a point in the evening with multiple sclerosis my body just has enough. My daughter has learned this point well over the years. It’s when she asks me a question or tells me she needs something at 8-9 at night but my mind and body is fond and shut down. Instead of responding like a normal human being I loose my marbles on her. That happened a little early last night…
Okay I have to write about the puppy. Meet Zoey… Zoey has been with us for one month tomorrow. For anyone who hasn’t read my blog, she came to us one week before my beloved Boomer died un expectantly. Talk about the universe knowing what you need. If I wasn’t a believer, I certainly would be now. The first few days with Zoey were tough. She was four months old but had an upper respitory infection and Giardia. She wasn’t…
Let me start by reiterating the reasons WHY I decided to become vegan. I was told by my sister and a friend about a movie Forks Over Knives. The movie is about how most, if not all, of the degenerative diseases that can afflict us can be controlled, or even reversed, by rejecting animal based and processed foods. There is also a book by Roy Swank called The Multiple Sclerosis Diet Book. In his book Dr. Swank also believed in…
I decided to go a little honest about our pharmaceutical world of MS. There has been so much press and promise over this new drug coming out for multiple sclerosis. Put Ocrelizumab in your web search and you’ll get article after article about the promise of this new drug. NEWS FLASH!!!! Rituximab is Ocrelizumab The patent on Rituximab expired in the US in 2015. Basically when they were doing the clinical trials with multiple sclerosis by the time they were…
Look at my last few weeks…I was gearing up for the holidays, got this puppy, go away for Christmas, my beloved dog Boomer died, I spiral into a complete depression, cried everyday for a week plus but my multiple sclerosis symptoms are relatively the same. Are they better? No, but they aren’t worse. Multiple Sclerosis isn’t directly linked to stress, but it never failed for me when I’d have high periods of stress, about one month later, BANG MS ISSUES….
