Those were the words this morning from my mom as she watched me swim in the pool. The pool which was so cold I might add. I was determined to do some laps this morning despite the near frigid temperature. I still swam for roughly a half hour. My mom, the sport she is, got in the frigid water with me so we could walk the pool. This particular pool gets shallow towards the middle and deeper towards the end….
It’s been less than 48 hours that I’ve been on vacation and my multiple sclerosis has not been easy. Half of my clothing I’ve worn so far has been washed due to bladder issues. Not a fun way to start. Really MS, you couldn’t keep that shit together for a few days? I’ve had countless people helping life me feet up small steps or onto golf carts from my family to hotel staff because my legs are far from cooperating….
First day on vacation and it is completely pouring outside. Like monsoon pouring at times. My poor daughter is wearing a sweatshirt and sweatpants trying to stay warm. She’s had a headache all day partly from her cold and partly because of the weather. I’m sneezing now too which isn’t good. I too felt sick and last night I had to sleep in a bathrobe because I was freezing. Not off to the finest first day here but we are…
This is one of my favorite lessons from a course in miracles. Lesson number 153. https://acim.org/workbook/lesson-153/ The reason it’s my favorite, because it was the hardest for me to deal with and overcome. I’ve written a couple of blogs on this topic my last one being this one https://multipleexperiences.org/2017/12/21/in-my-defenselessness-my-safety-lies/. Even now three years into a course in miracles, it’s still difficult for me to remember this lesson. I always want to defend myself and defend my actions and it’s a…
It’s finally here a trip that’s been planned for years. It’s a family trip that was supposed to be for everyone’s big birthday celebration. My mom’s 70th, step dad’s 65th and my 45th. Since I just turned 47 you could see that didn’t work out. However now we are celebrating their 40th anniversary and we are leaving Sunday morning for Mexico. One week with my family in a sunny Mexico. I’ve never been there but everyone else in my family…
I have such issues with shoes now. I miss the days I could wear my boots with chunky heels. I never could wear stilettos but I could get away with those. Now I can only wear sneakers or wide shoes that are completely flat. I use to wear Keds sneakers all the time. Quick slip on shoes that I had no issues putting on myself. Now, thanks to swelling that is still unexplained, they are too small. I wear my…
My neurologist from early on has done MRI’s of my spinal cord. It is where most of my MS activity has been over the last 21 years. My first major attack back in 1998 left a large lesion in my brain but since than it has really all be spinal cord. So what does that mean? Well I asked my doctor the same question. He said spinal cord is why I have no cognitive issues as I’ve progressed. He also…
It’s was my routine checkup with my neurologist today. One month shy of my 21st anniversary of my multiple sclerosis diagnosis. This appointment was with the neurologist that made that diagnosis 21 years ago. He knows me well. My folder is very thick and over the years it has been thinned out and moved into storage. Every time I see my file it is a reminder how long my history with this disease has been. 21 years. I ignored it…
I asked in therapy about the issue I had in mahjong last week https://multipleexperiences.org/2019/01/04/couldnt-hold-myself-up/ with holding up myself up. We discussed the issue with my weakened core muscle. I’ve had multiple sclerosis for almost 21 years and it was my core region that was on of the first things effected by MS that never got better. It an area that has always given me issues and has always been an area we work on in therapy. A while ago I…
