I had a really good final physical therapy session on Monday. I walked further than I walked all this year. Where I am walking to, I don’t know. I have come a long way since coming home from the hospital. Still not where I was. I think some of the disability changes I can live with easily. Some are demoralizing and as an 50 year old woman, they came to fast. Multiple sclerosis is not an easy disease. I’m not…
The switch with the new aide actually went pretty flawlessly. My current aide actually had a lot to do with that. She really took the time to show the new aide around. She didn’t have to do that. It wasn’t an aide from her agency. It was an aide that was replacing her. I think I was more impressed with her this week than I have been the entire time she’s been with me. I actually was a little sad…
I’m doing better with the spasticity. I was never a person who thought Baclofen really did anything. I’ve taken 10mg a day, as preventative, for as long as I can remember. Well increasing it to 20mg twice a day has definitely did something. The constant dull ache I’ve had in my lower back has almost completely subsided. I am able to bend my legs to get up more often than not now. I’m not cured but doing much better. I…
So far it’s been an interesting week. I finally called my doctor about the spasticity. https://multipleexperiences.org/2021/10/29/spasticity/. However if you check out the blog post’s comments you’ll find a really good suggestion from Tom. Even though I take 10mg of Baclofen daily, I personally never felt like it was a big help for spasticity. I take it daily to keep it in my system. When I do have spells of spasticity, I have the prescription to take up to 3-10mg tablets…
Now that I’m moving, I have to pack. I went from my house to an apartment. It was a lot of downsizing. Now I’m going from an apartment to a condo. So I have to downsize again. I thought it was hard moving from a three bedroom house with a full dining room, living room, kitchen and den into a two bedroom apartment. Now I have to go from a two bedroom apartment with a huge living room, kitchen, crawlspace,…
There’s a reason I have an aide for eight hours a day. There’s a reason I don’t work anymore. Sometimes I feel like I’m running a scam, that I should be working or I don’t need an aide eight hours a day. Especially when someone says lucky you. Let me explain something to you and myself, I’m not a lucky girl. I’m not a lucky girl that I’m on full disability and don’t work. I’m not a lucky girl that…
