It is official, my daughter moved out yesterday. Unfortunately, she didn’t move locally so she won’t be popping over anytime. Her trips home will have to be planned with a plane, train or car. Everyone asked me all week if I was ok, and I really was. This morning saying goodbye tears flowed because of pride. I am just so proud of her. She has had to work very hard to get to this point. Life certainly hasn’t been easy…
My daughter is graduating from college on Tuesday. I am so proud of her. She has not had an easy road especially when it came to school. She was born with a progressive hearing loss called EVAS, enlarged vestibular aqueduct syndrome. In basic terms, her ear was formed with deformities. This enlarged tube allowed fluid to leak, eventually destroying the hairs on the ears nerve where sound travels. I’ve written a few blogs about her but the following is the…
My baby is bringing her stuff down to her car again. I have both dogs on me staring at the door I might be just as sad as them, not because she’s leaving, because she’s still having a tough time with the roommates. We are trying to find someone to take over her portion of the lease and she’ll move back to campus housing but we haven’t been successful yet. It is a bad situation and I hate having to…
This will be brief because I don’t have too much energy for concentration. I just can’t get out of the migraine cycle. I took my migraine pill yesterday didn’t help. Took it again today and that’s really not good. I take a preventative medicine for migraines, Topiramate. I’ve been taking Topiramate for 4 years increasing from 25mg to my current dosage of 75mg. My doctor just increased the dosage and the times I take it. Now I’m taking 100mg but…
I’m gazing out the window, trying to decide what I want to write about, and I’m really looking at just a wall of white. There’s a very thick fog out there. I can’t see the ocean. My dog obviously sees something he keeps barking. I’m not in a happy mood today. I’ve got two things I’m dealing with insurance about, one for me, and one for my daughter and I’m just so fed up with this stuff. I got a…
It really started last night. Because my daughters is deaf and wears cochlear implants that come off at night, she needs an alarm clock that will shake the bed to wake her up. The school has one that they put in the room that is tied to the fire alarm but we had no idea how to work it. So we took her alarm clock from home that she’s used for the past 10 years. She brings it to her…
My daughter’s first cochlear implant was done when she was 3 years old. When I made the decision to put in a cochlear implant, I was also making the decision to make her completely deaf. She would have absolutely no hearing in the implanted ear when the cochlear was off. This is a sweet video of a young boy whose implant was turned on for the first time https://youtu.be/9EVNfd1igoE. This was not AT ALL how it went for us. My daughter…
I have so much going on in the next month I’m a little overwhelmed. I’m trying not to think about it. The most important thing is my daughter turns 18 in a week. ONE WEEK SHE’S 18!!! How did this happen? What a long road we had. My daughter was born a little over a year after I was diagnosed with multiple sclerosis. The neurologist took me off birth control, and the pullout method didn’t work. The best accident I…
it’s the beginning of another week. Kind of strange when you don’t work because you’re weeks don’t normally run like a workday week. However every Monday is physical therapy and my daughter is back to school so I still consider it the start of the week. March is my last month of physical therapy, then it becomes a self-pay. They run a really great program called strive. You pay a monthly fee and you can use the gym and equipment…
Years ago when I was in my 20’s I had this vivid dream about Bono. if you don’t know who I am talking about, it is this gorgeous man… He was sitting alone at the edge of a step on a grand staircase kind of like this… He looked so sad. I sat down next to him and just talked. I remember waking up feeling like I met Bono. I felt a connection to a man, I’ve listen to sing…
