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Tag: difficulties with ms

Handicap parking spot abuse

Handicap parking spot abuse

Can we talk about handicap parking? I know I’ve had blogs about this before, but it’s still a very sore topic for me. I understand that there’s a requirement that a certain amount of spots, based on the size the property and the total number of spots allocated, have to be given to handicap parking. It just never seems to be enough. Why is it never enough? Because everybody seems to get one. It’s not for the truly disabled anymore….

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My own handicap reserved spot

My own handicap reserved spot

My condo gave me an assigned spot. There are six handicap spots in front of my building. Normally I leave in the morning and I’m back in the mornings, I get a spot back. However if I go out towards the afternoon, sometimes I don’t get a spot. The other close spots could also get taken pretty easily especially at night. If I’m having dinner with a friend, when I come home, parking is a problem. I can’t walk that…

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Swimming-water therapy for multiple sclerosis

Swimming-water therapy for multiple sclerosis

I’ve have a MS fitness trainer that I’ve been working with for about a year and a half now. She would come to the house and get my body to move in ways I personally wouldn’t willing force my body to do. It was hard. She saw where my body was weak and would attack my body in exercises, from different vantage points, to try to manipulate the muscles to do certain movements. When I moved to my new condo,…

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Managing fatigue

Managing fatigue

I didn’t sleep well yesterday. Actually I barely slept. It’s been a very long time since I had a night like that. I don’t do well with lack of sleep, most MS patients don’t. For me personally, lack of sleep can create a very bad day. Luckily, I’m home today. I’ll be cooking in the morning. This afternoon my air conditioner/heater in my bedroom is being fixed. I end today with my MS fitness trainer in my pool. I have…

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Another day, another battle

Another day, another battle

Tough morning so far, and I’ve only been up for an hour. You ever have one of those mornings where everything seems to happen all at once? I know, everyone has them. I got a lot done it in a very short time. I got a letter from state financial aid, for my daughter, that I wasn’t approved. I had to call and it turns out I have to submit a revisal because I’m on disability. Great!!! I just need…

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My disabling MS attack in 2014

My disabling MS attack in 2014

It wasn’t always a battle. I remember at 40 I was still walking pretty good. I’d have a limp every now and then, when my legs were tired, but an outsider would never know. I’d have occasional bathroom accidents that I used to hide, but back then it was easier. Most of my symptoms were invisible. My balance was never great and I wasn’t running any marathons. Hell, I wasn’t walking any marathons either but I was nothing like I…

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A funny MS story…you have to find the humor

A funny MS story…you have to find the humor

I’ve written in my blog, some time over the past week, that my knees are so sore from crawling around when I’m on the floor and I have to find a place to help me stand up. Yesterday was just a bad MS day. I was frustrated, I was having difficulty walking and it just seemed I ended up with my knees down on the ground, not in falls, but I had to keep crawling around to help myself stand…

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Occupational therapy evaluation…OT differs from PT

Occupational therapy evaluation…OT differs from PT

I had an OT evaluation yesterday. 0T stands for occupational therapy. The difference really between physical therapy and occupational therapy is occupational therapy deals with more fine motor skills. Physical therapy deals with more of the physical stuff. I never realized my health care covered 20 days of both therapies. I thought it was 20 days total. So this will be the first time in OT. For 13 years, I worked in a nursing home as a financial billing office…

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Learning to crawl

Learning to crawl

I don’t know how babies do it, they spend months crawling around before they walk. Unfortunately, I’ve had to learn to crawl again. It’s part of the last five months of physical therapy. Crawling forward and back every time I was there. Why? If you don’t have MS you might not know why, if you have a MS you unfortunately know why. It’s because sometimes when I’m on the floor I can’t get myself back up. This could be because…

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And so it begins…heat and MS

And so it begins…heat and MS

There is no winning when it comes to temperatures anymore for me. I can’t handle the extreme cold and I can’t handle the extreme heat. It’s exactly 8:22 as I am writing my blog today and I have all my windows open. Currently the temperature is 65° out going up to 73°. my temperature in my house is showing 70°. That’s a little on the warm side, we’ll see what happens as the day progresses. Where I am sure I…

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