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Tag: difficulties with ms

Thursday dilemma

Thursday dilemma

Woke up to my phone ringing at 6:45. Thinking that it could be my daughter, I rolled to the floor instead of fighting with my stomach and arm muscles to put me in a sitting up position. By the time I got to the phone the answering machine picked up but my phone announces who is calling so I knew it wasn’t my daughter.  They didn’t leave a message but by the name, I realized it was the aide they…

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Opening again to the possibility of a relationship

Opening again to the possibility of a relationship

For the first time in a long time, I put in my morning affirmations an openness to meet someone. It’s been probably close to a year. My future person, if there is one, isn’t on match or plenty of fish. If I meet someone it’s being at the right place at the right time. Who is my guy? Well I can tell you who he isn’t. He’s not a sex crazed nympho-maniac. I don’t think I was ever in this…

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Is it an MS symptom or not?

Is it an MS symptom or not?

If you’ve suffered through this disease for any amount of time, something strange will happen in your body and you’ll ask yourself this question. It’s normal. Eventually the answer stops making you crazy and you just deal with it. However, I believe that the longer you have the disease the more you know what is or isn’t the disease. Even better you know what symptom is making other problems of yours worse. Like today, I realized my shoulder tendonitis has…

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Peri-menopause, menopause and multiple sclerosis

Peri-menopause, menopause and multiple sclerosis

The topic of peri-menopause has been coming up with my friends because we are at or around that age. I was curious of the symptoms of peri-menopause which webmd has listed as: Hot flashes Breast tenderness Worse premenstrual syndrome Lower sex drive Fatigue Irregular periods Vaginal dryness; discomfort during sex Urine leakage when coughing or sneezing Urinary urgency (an urgent need to urinate more frequently) Mood swings Trouble sleeping Great, considering about 3/4 of that list are also MS issue…

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This weeks MS symptoms

This weeks MS symptoms

These aren’t new symptoms they come and go. I just wish I knew why. I guess I wish I knew why with a lot of MS related things. Spasticity has been bad this week. I woke up Monday morning, or I should say didn’t sleep well Sunday night from pain. I always describe the spasticity in my back as if someone was twisting my tendons and muscles like you would spaghetti onto a fork, that’s how it feels. I ended up…

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Urinary tract infections and MS

Urinary tract infections and MS

I worked in a nursing home for 13 years. I was in finance but I was in charge of the census daily. The census was how many people were currently in the home. It showed any new people that came in and anyone that left. It also showed diagnosis of these individuals. Urinary tract infection, UTI, would send more elderly people to the hospital than you could imagine. UTI in the elderly can actually look like early Alzheimer’s disease. They…

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My MS fitness trainer

My MS fitness trainer

I have this wonderful woman that comes to my home every week to work me out. She is an MS fitness trainer. She doesn’t have me doing weights or cardio, she has me working with kickballs and rings and my own body weight to work and move muscles that are weak and damaged. Muscle movements I would never go near because they are hard. Lots of core work. My very first attack back in 1998 left my left leg with…

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Yup, another day in my life…

Yup, another day in my life…

I don’t like to complain in my blog. Ok, sometimes I do. I live with a chronic illness of multiple sclerosis everyday, eventually you break and post your disgust. I’d like to say that I don’t do it often. That being said, I have to complain this morning over just some stupid stuff that is really all resolved now. It would have been my blog post yesterday but I had that migraine and I just couldn’t focus to write. It…

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45 years old, it’s a difficult pill to swallow

45 years old, it’s a difficult pill to swallow

Good morning and happy Monday. In the US its Labor Day and most people are off from work. Today marks the end of summer. School usually starts tomorrow for most kids. To me, it’s another day. I don’t work anymore. It’s been well over a year, closer to two years and I’m still adjusting to that fact. You’d think I’d have all this time on my hands but everyday seems to fly by no different than if I was on…

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Ocrevus infusion aftermath conclusion

Ocrevus infusion aftermath conclusion

Yesterday was a rough day. I was very uncomfortable and tired. It happens but the good news is I knew WHY it was happening. I slept a lot yesterday. I took a 2 hour nap on the couch with my fur babies on either side. Even with the nap I still went into bed at 9:30pm. I feel less fatigued today, I don’t feel that weight in my bones but my skin is still sensitive. I HATE steroids. This was…

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