We’ve had a turbulent relationship over the last 19 years to say it mildly. There have been many one-sided fights. I’ve told my story before bug sometimes it’s worth repeating. My first MS attack (exacerbation) was sever. The entire left side of my body went numb and atrophied. I couldn’t walk, hold anything or feel on the left side. It came on fast starting in my foot on a Saturday and by the time I saw the doctor that Friday…
Let me first address the fact that it took an hour and 45 minutes to get into the city for my check up. That means I’m doing nothing for all that time. I was her first appointment that morning. When we do my neurological checks and timed walking, I’m at the best I’m going to be. Therefore the check up is based on this point. However how realistic is it? This is the first time I was her first appointment,…
I’ve written blogs about this in the past, my daughter at 17 takes on the bulk of the responsibility. It’s not something a 17-year-old signs up for, and she’s been doing it for years. My mother takes on the brunt of the emotional side of my multiple sclerosis. Another topic of my blogs that you could find throughout. My step dad takes on the emotional backlash of what my mom takes on, breaking his heart. Plus he’s the one taking me to…
When you go to group meetings on the specific subjects, normally you talk about that subject. When I joined my MS support group, I guess I thought it would be more of a round circle kind of discussion group. I’ve definitely have walked away with information that is very useful. I’ve made friends that have been a wonderful additions. I just thought it would be more of a support group of people talking of issues, frustrations and feelings. I didn’t…
I said in previous posts something was brewing with my MS lately, and unfortunately it still is. A quick note to my mom, if your about to read this, while in your hut, on a beautiful beach,on your vacation, I’m fine. I’m doing what I always do, accept, adjust, adapt. Well things aren’t so great MS wise, I wish I can say they were. Sometimes I wonder, did things get worse because I stopped working? Was that constant push on…
You think I ran a marathon this morning. It’s 8 o’clock, I’m exhausted. This day is not going well at all so far. It started off with in a ms issue, that I just rather not discuss. However from past blogs, I’m sure you can do your own guessing. What’s worse is im pretty sure I brought this problem on myself. I ate leftover curry soup I made. I thought the taste might be off, could veggies go bad in…
For all the bad moments, there are always good moments. I would love to say that I’m feeling a lot better, that whatever is brewing with my MS is gone, but I unfortunately can’t. However as always, I’m back to my normal, my usual somewhat positive self. I think that might have to do with the fact that my little sister is in from California and I’m seeing her today. The sun is out, although that wind is howling, but…
Yesterday was a bad day. First my doctor visit went as expected, which was nowhere. What I mean, is that not much could be done at this point, my symptoms are treated symptomatically. He doesn’t really think that I’m experiencing an MS hug, I don’t even think he really understood what an MS hug was. He’s been my doctor for 19 years and for the first time ever, I was a little shocked. Especially since the first thing we were…
Before I even start today’s blog, I need to give hug of condolences to my little sister, who put her dog Blueberry down yesterday. Blueberry now joins my Boomer over the rainbow bridge to wait for us with a few other past dogs she had. Lets once again discuss life with multiple sclerosis and its challenges. My daughter had to be in the city today to take a math placement exam for John Jay College. Since we had to be…
I’m all packed up and ready to go. My daughter Mikayla and I are going to Florida to visit my dad and stepmom. I’m already exhausted and I haven’t even gone to the airport yet. My final morning items had to be packed all while watching the puppy. Zoey wasn’t being very cooperative to say the least. I just picked up the dog sitter now. I’m very lucky I have her. She loves my dogs almost as much as I…
