Sure the goal is for me not to end up on the floor but let’s be real, it is going to happen. To be able to get myself up off the floor is a big deal. Especially since not even a week ago I was in the exact same predicament and I couldn’t get up. I had to wait for my aide. Once again on the floor. Not yesterday, I learned from my prior week struggle I was in my…
At the age of 49 I’ve lived almost half my life with the disease. It was the weekend of Valentine’s Day when I was moving into my new home that my left foot started to go numb. Within 4 days it was all the way up the entire side of my body. Within 6 days I was at a neurologist who was asking my mom and I if anyone in my family had MS. Having actually had optic neuritis about…
Well unfortunately I had a tough morning. It seems my stomach is still having issues. I had to shower upon waking up this morning. I wish I knew what was causing all of this unsettling in my belly over the last few weeks. I’m scared to take anything because the fear of it binding and I experiencing the alternative is just as bad. However this leads me to make many trips necessary and unnecessary to the bathroom in fear of…
I had quite a few “accidents” this week. It seems my body likes to be either bound up or flowing free. I have yet to master a medium ground. Frustrating as it was, I figured at least I’d have a weight loss this week but even that wasn’t so. Oh well at least that has a medium ground it hovers around on. It got me thinking about when some of these issues first started showing up. I realized how long…
Ive had pretty significant changes that have been happening regarding my multiple sclerosis symptoms lately. In the grand scheme of things they might not seem significant but for me they are. My feet are pointing and flexing. They actually do it even better than this little video but I took this right after I worked out. My chin muscles are moving my feet really well. Not bad for someone with foot drop. I started phase 2 of standing strong and…
I’m doing a new program in the MS gym called standing strong. Yep has a lot to do with standing. I started phase 1 with my therapist. It had a lot of floor work as well as chair work. So I started integrating it with my previous program. I’m done with therapy but I really wanted to continue with this new program so I was determined to find something that I could make work without needing someone’s assistance to get…
I am not sure but I might be having hot flashes. I honestly can’t tell because I get the same issue with my MS. How are you supposed to tell the difference? I can overheat,from doing nothing, and start sweating anytime. I’ve blogged numerous times about the issues with MS and regulating body temperature. https://multipleexperiences.org/2018/07/16/regulating-body-temperature-with-ms/ orhttps://multipleexperiences.org/2020/02/25/ms-and-body-temperature/. In the last few weeks I’ve been having these hot flash things. I mean the heat creeps up and I break out in a…
Well good morning to everyone. Happy Monday. I am dictating this through my new iPhone. Hopefully the dictation goes better than the old phone, after all the issues I’ve had dealing with the purchase of this new phone, at least something needs to go right.You can’t make this up….  I must say, so far, it’s working really well. I’ve had a tough weekend, I’m still just not feeling great, not sickness wise, more MS issues. i’ve slept in every…
I wasn’t feeling well all day yesterday. I actually napped most of the day. Well I had the TV on and my eyes closed. For me that’s pretty much napping. I just didn’t feel well. No fever, no aches but my muscles felt sore. That was the best way for me to describe it. I went to sleep early but unfortunately that didn’t go off quite as I intended. At about 2 o’clock I was woken up with bathroom issues….
Hello again, it is once again Monday. I’m very happy to say my aide will be here today. Unfortunately, it will take me some time to recover from the last week doing it mostly alone. Even having food prepared and only doing what I absolutely had to do, it was a rough week. There is a reason I have an aide. I sometimes feel like it is really just to babysit me but truth is the amount of energy it…
