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Tag: living with a chronic disease

Difficulty with the extreme cold and MS

Difficulty with the extreme cold and MS

Last week it in New York it was in the single digits before you add it in the wind factor. At that point it was the negative digits. I went out to eat at a restaurant with my family. The restaurant had open windows on all sides and even though the heat was turned up, it just couldn’t compete with the cold outside. The restaurant was freezing. We were there with cousins we haven’t seen in a while so it…

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It started out with a kiss

It started out with a kiss

Well add one part wine, brought by him, two parts attraction and a little honesty and what do you get? A kiss. I’m in sweatpants and a sweatshirt, not my most attractive look, but not expecting the nights events either. Maybe i would have shaved and put on some make up. Definitely would have changed into something more appealing but I neither expected this nor though it would happen tonight. Guess what? Interest laid on both sides. I gave my…

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Despite my MS, I am very happy

Despite my MS, I am very happy

I’ve lived in my condo officially two weeks today. I know I sound like a broken record and I apologize, but I just am so happy. I’m always blogging about all the bad things, living with multiple sclerosis and how tough it is, it’s just so nice to recognize the good things. Every day I say to my mom, I love this place thank you so much. I probably could say that every day and it would never be enough….

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Another one of those days, weeks, months with Multiple Sclerosis

Another one of those days, weeks, months with Multiple Sclerosis

Beautiful sunny day and I wake up with a headache. You know when you just haven’t felt right? That’s how I’ve been lately. I know, I know I have multiple sclerosis. Yes, that’s very true and the chances of it being just something with my multiple sclerosis is extremely high. However I just haven’t felt right. I’m not really sure what’s up. My doctor called with my blood work and again, everything is fine. I definitely don’t have Cushing’s, diabetes…

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Happy New Year-Welcome 2018

Happy New Year-Welcome 2018

Wow, that was fast year. Happy new year to everyone, have to start with that. I hope everybody had a safe and wonderful evening wherever you were. I have to be honest, I was asleep before midnight. I think this is the first time I fell asleep on New Year’s before midnight. I was always so happy to be done with the current year and hopeful that the next year would be better that I guess I had to see…

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Relapsing Remitting and Secondary Progressive MS, a combination of both

Relapsing Remitting and Secondary Progressive MS, a combination of both

It’s 20 years that I’ve dealt with my multiple sclerosis. When I first started doing research on my own illness, it was stated that most people go into the second stage of the disease after about 10 years. The second stage of the disease being secondary progressive MS. Most people start off in relapsing remitting and, at the time, it was said that 80 percent of people in this stage will go into secondary progressive around that 10 year mark….

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Snowfall and Multiple Sclerosis

Snowfall and Multiple Sclerosis

The first snow is supposed to fall today in New York. I always loved the snow. I never liked driving in it but I loved to look at it. I love when it’s quiet and everything is white. You look outside the street the world just seems transformed and peaceful. Everything appears so different. However after that snow, what a mess. There are huge piles of snow because the plows. There are always parking spots that are taken because of…

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My first cold since starting Ocrevus

My first cold since starting Ocrevus

You might be asking, why does it matter that I’m taking Ocrevus and I have a cold? It’s important to remember what Ocrevus does. Ocrevus depletes B lymphocytes, a white blood cell in our immune system. Ocrevus is an autoimmune suppressing drug. Something as simple as a cold, may not have the same effect on me as it does the person I caught the cold from. For me, this cold has put me in an psuedo-MS attack. A pesuedo-attack is…

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The germ theory

The germ theory

My dad sent me an interesting article yesterday. I couldn’t share the exact article but was able to find similar articles online. It is about the theory of catching a cold from someone, like I did from my daughter. It was very interesting because it talks how disease stars within NOT from external components. If your healthy inside you won’t every have to worry about those germs on the outside. Guess what, I, as well as many many others with a…

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Uh oh, I’m getting sick

Uh oh, I’m getting sick

My favorite person came home from college last Thursday with a terrible cold. Poor thing was so sick. I wasn’t even sure it was just a cold. I thought she could perhaps have a sinus infection. However come Sunday the pressure in her head was somewhat better and she didn’t want to go to the doctor. I thought I was being careful around her so I didn’t get sick but alas, she shared my giant jug of water I always…

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