Browsed by
Tag: living with a chronic disease

Was MS present long before my diagnosis?

Was MS present long before my diagnosis?

I’m pretty sure I had a MS long before I was diagnosed . I had many strange things happen even as a child. When I was in the fifth grade, I got it rash.  The rash was only on my hands and my feet, like gloves and socks. The day my mom took me to the dermatologist, I  threw up in the bathroom. The dermatologist said I was having an allergic reaction to the virus. My body was literally allergic…

Read More Read More

The only thing you control in a chronic illness

The only thing you control in a chronic illness

I was diagnosed with MS in 1998. That was over 19 years ago. It’s 42.2% of my life. That’s a long time. There’s only one sure thing with a chronic disease, it holds true with any situation, the only part fully in your control is Your attitude Yes, you could eat right, take the medicine as directed, exercise, not smoke, and not do drugs, these are all wonderful things that may slow down a disease, but it won’t cure one….

Read More Read More

Am I depressed?

Am I depressed?

I have to be honest, I’ve been asked this more than once by family members, doctors and friends. For probably 15  of the 19 years I have MS, I was on Prozac.  I think in my 20s I was miserable for many reasons, especially when I got my diagnosis. However, the main reason for Prozac was because Betaseron, my MS therapy drug, had the side effect of depression.  It’s like you take a drug, but then you need something to…

Read More Read More

Starting the process of getting an aid

Starting the process of getting an aid

Good morning and happy Friday to everyone.  Most of the time I dictate my blog through the voice on my iPad. Then I go back and correct any mistakes, which are usually a lot and sometimes hilarious. What obviously never comes across is my voice inflections when I’m speaking, probably why my humor doesn’t come across. I guess you can’t hear sarcasm in words that you read. Oh well, back to my topic, which this morning is, that I started…

Read More Read More

Emotional freedom technique

Emotional freedom technique

This is actually a reblog of mine. I used tapping for weight loss and self esteem issues some time ago. I must admit, I haven’t been doing it at all lately, but I know it’s a great tool. I’ve been having problems sleeping. I’ve been waking up almost every hour. I can’t stress how important sleep is with MS, or any chronic condition for that matter, and I’m not getting enough. In my email today was an article about tapping…

Read More Read More

Counting spoons

Counting spoons

I’ve been up since 4am, listening to old episodes of Cheers, while I laid in bed praying I’d fall back asleep. Even Zoey and Marshy were snoring away, but not me, I just laid there, hour after hour. I finally gave up at around 7:30 and made coffee. I start each day with a certain amount of steam in me that fizzles as the day goes on. How much steam I start with can vary everyday. I read on a…

Read More Read More

Why me?

Why me?

Living with a chronic illness, there has to be at least one time you’ve  said, “why me”. Let me ask you a question, if you can take your disease and give it to somebody else, knowing how you suffer, would you?  I remember being in one of my doctor, with my step dad, and him making a comment about why I had to have MS. The life this disease has stolen from his daughter.  My reply was, maybe there is a reason…

Read More Read More

My current list of medications for my MS

My current list of medications for my MS

With any chronic Illness, I think our medicine cabinet becomes a small pharmacy. I thought I’d give a list of what I am taking for my multiple sclerosis, the dosage and the reason. I’ve included links to my other posts if I have information that I thought was useful on a particular drug or vitamin. This post is an added plus for me. I can print and give to doctors instead of rewriting each drug I take on their medical…

Read More Read More

What is a multiple sclerosis good day?

What is a multiple sclerosis good day?

What is a multiple sclerosis good day? It’s obviously different for everybody.  Everybody has different symptoms, different challenges, different feelings and different things that they deal with in their daily life. So unfortunately, I can’t speak for everybody, I can only give my opinion. I want to say that I feel that anybody that has been diagnosed with multiple sclerosis is a warrior.  If you’re newly diagnosed, and you’ve come through your relapse, you might have come off the battlefield, for now….

Read More Read More

Today’s a new day

Today’s a new day

I’m certainly better than yesterday, I should start the blog off with that. Sometimes you hide how you feel inside because you don’t want to live feeling like that. Yes my life is hard. Yes things are a challenge. Yes it’s a sucky disease. Most people know this. I don’t have to reiterate that fact each day, so I try very hard not to. However it is the truth to MY life and it is like this 24 hours a…

Read More Read More

Verified by MonsterInsights