ive told the story in past posts about my parents and the pain my MS has caused them. To watch your child hurt and suffer when you stand by helpless is the worst feeling for a parent. I know my disease has repeatedly broken my parents (all 4 of them) hearts at various times through the years. I’ve had challenges with my daughter too. She was born with a progressive hearing loss. It is called EVAS, enlarged vestibular aqueduct syndrome. Her…
Did I ever make a post for part one? Not even sure. But I know I’ve had a lot of posts about dating and here’s another one. I’m going on a date today actually in a couple hours but this one I’m looking forward to. This is a gentleman from match.com. He actually reminds me of a good friend of mine that I met on match.com probably nine years ago already. We went on one date to a Paul McCartney…
*** this exercise was from a book I read return to love by Marianne Williamson that I did previously when I read it I was recommended again to be done at my life coach so this part of the exercise is the letter that MS writes me in response to the letter I wrote yesterday. Dear Jamie, I’ve read your letter and I can hear the pain in your words. I don’t know why I chose you. I don’t even…
Dear Multiple Sclerosis, It’s been 18+ years you’ve been in my life. Your like that negative friend I can’t break away from. I’ve written this letter to you before but my life coach has asked me to revisit it because she feels that maybe I wasn’t fully honest in that letter. You see I try to put up a brave face. When the diagnosis came people were devastated around me and I felt I needed to be strong. It wasn’t…
I remember 18+ years ago being at that neurologist office when my entire left side of my body wasn’t functioning. I couldn’t really walk, I had muscle atrophy, numbness, weakness and gait difficulty. The doctor asked if anyone else in my family had MS. He knew before the MRI was even done. I sat crying in a chair as my mom leaned in front of me and said “everything was going to be ok”. We got in the car to…
The first time I contacted this group was about 10 years ago in hysterics. It was at the time my husband and I decided to get a divorce. Knowing I’d loose my house, I also thought I was going to loose my puppy. I remember sobbing and the really nice woman telling me, “you might find a place that will let you have him. We are here if you need us but I can tell that you love this dog,…
Yesterday was another lovely day out. Perfect weather, sunny not to hot just so pretty. That wasn’t what made it so lovely though, my youngest cousin came from the city and spent the day. Have you ever met that beautiful person that was just so genuinely nice and endearing? That is my cousin. She has the most beautiful smile that just seems to always be on. Just a completely genuine nice person on top of it all. I take all…
Sorry all you beach bums but I’m a a fall weather girl. I love the crisp air, leaves changing color, Halloween, thanksgiving, my birthday and my oversized yummy sweatshirts. I love the smell of cinnamon and apples, pumpkin picking, hay rides and pies. There is nothing about the fall I don’t love. This is my time of year always has been. I just have so many good memories of this time of year. My favorite picture of my daughter was…
JI had a nice unexpected guess yesterday in the form of my sister she came over cause she had some time to kill which was really nice to see her. However she told me she couldn’t read my blog lately because it’s been depressing her. I do have to admit it’s been a tough couple of weeks so this one’s for her will be more upbeat because I’m really doing a lot better than I was. There really is something…
I don’t know when it happens we just wake up one day and we went from 21 to 40 something. I look at my kid who’s driving herself to school who’s going to college next year and I say to her college was my favorite years and I think of it like it just happened a couple years ago. I mean I put on the radio and they say NSync is classic easy listening, wasn’t that in the 90s was that…
