It’s was my routine checkup with my neurologist today. One month shy of my 21st anniversary of my multiple sclerosis diagnosis. This appointment was with the neurologist that made that diagnosis 21 years ago. He knows me well. My folder is very thick and over the years it has been thinned out and moved into storage. Every time I see my file it is a reminder how long my history with this disease has been. 21 years. I ignored it…
I asked in therapy about the issue I had in mahjong last week https://multipleexperiences.org/2019/01/04/couldnt-hold-myself-up/ with holding up myself up. We discussed the issue with my weakened core muscle. I’ve had multiple sclerosis for almost 21 years and it was my core region that was on of the first things effected by MS that never got better. It an area that has always given me issues and has always been an area we work on in therapy. A while ago I…
This wasn’t good. I went to play mahjong for the second time yesterday. It is a game like rummy cube with Asian tiles. Your hands must match to an approved hand on a card. You play with four people around a square table taking turns picking and throwing tiles. Not very strenuous unless you have some type of multiple sclerosis symptom making it difficult. I had that MS symptom. At first I was fine, other than my game itself. However…
I guess it was inevitable that once you put the carbs back the weight comes back as well. It didn’t take long and was actually a little alarming. At first I gained ever pound I lost within a week. That was disheartening but then it leveled off and I took off a couple of pounds. I’m still up five pounds but so be it. Why I changed? At first Keto was yummy. When you haven’t eaten cheese and butter for…
One of the most common of MS symptoms are spasms. They can range from mild to severely painful. I know many people with both extremes. I am considered mild. I have them in my legs mostly but also in my back. It’s my back spasms that can have the highest degree of range. On a good day I may have a few spasms in the whole day. A bad day I’ll have a few spasms every hour. Even the spasms…
I tried Keto for a few months and it did work for me at first. I did take off weight but eating like that wasn’t something I could do on a long term basis. As I got sick of the food, I started eating bad. I just don’t like cheese and butter all that much after not eating it for over a year. At first it was good like a new treat but that wore off quickly. I did like…
I’ve suffered from migraines for over 15 of my 21 years of having MS. I remember when I got the first one. I was driving home from a meeting that was close to one of the NY airports and I was in major traffic. Probably a little stressed because I had to pick up my daughter at school. It started as an Aura, one that I’d get to know very well over the years, but this was the first time….
Well actually it’s cold out of here and by that I mean the pool. I go down and it’s all warm. I get into the pool and it’s nice and warm and I get out and I’m frozen. I think it is once again a big thanks to my MS that once that chill sets in I can’t get warm until I hit a hot shower. That leads to overheating and acting up my other MS issues. Not the most…
I saw this article on healthline https://www.healthline.com/health/multiple-sclerosis-ms-gift-guide This list was put together by a MS blogger and her blogger community of items they felt were great for holiday gift giving. The article goes into full details of each item and where you can find them. It even explains why each item is a good gift. The holiday gift for a person with MS: Cooling clothing and gear Help around the house Home Entertainment Productivity or adaptive technology Wear for your…
I am still doing this all these months later. I now eat between the hours of 11-7. I also don’t usually drink my coffee until 11 as well. The truth is I haven’t lost weight from this but I haven’t gained weight either. I have to agree with the doctors that losing weight when you lose mobility is very difficult. I sit most of the time so I don’t burn as many calories as the average person. I do try…
