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Tag: living with MS

Beachbody on demand, workout with MS

Beachbody on demand, workout with MS

Go Me!!! I haven’t worked out on my own since sometime in June thanks to my shoulder tendonitis. Against my will, every time I tried to do something I felt it in my shoulder and I knew if I continued, the pain would be back until I ended up needing another cortisone shot. A shot I’m only allowed to receive once every 3 months. It killed me to stop. I worked out 6 days a week for years. I had…

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I am simply happy

I am simply happy

I have to admit something, since I started taking Prozac again, I stopped crying over everything. I was literally crying over everything good and bad, happy and sad, it didn’t matter. I didn’t want to believe it but I was not altogether. It’s been maybe 5-6 months I’ve been back on it and I realized something the other day. I am happy Is my life perfect, absolutely not, but I’m happy. I started my spiritual journey over a year and…

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My MS fitness trainer

My MS fitness trainer

I have this wonderful woman that comes to my home every week to work me out. She is an MS fitness trainer. She doesn’t have me doing weights or cardio, she has me working with kickballs and rings and my own body weight to work and move muscles that are weak and damaged. Muscle movements I would never go near because they are hard. Lots of core work. My very first attack back in 1998 left my left leg with…

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Yup, another day in my life…

Yup, another day in my life…

I don’t like to complain in my blog. Ok, sometimes I do. I live with a chronic illness of multiple sclerosis everyday, eventually you break and post your disgust. I’d like to say that I don’t do it often. That being said, I have to complain this morning over just some stupid stuff that is really all resolved now. It would have been my blog post yesterday but I had that migraine and I just couldn’t focus to write. It…

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45 years old, it’s a difficult pill to swallow

45 years old, it’s a difficult pill to swallow

Good morning and happy Monday. In the US its Labor Day and most people are off from work. Today marks the end of summer. School usually starts tomorrow for most kids. To me, it’s another day. I don’t work anymore. It’s been well over a year, closer to two years and I’m still adjusting to that fact. You’d think I’d have all this time on my hands but everyday seems to fly by no different than if I was on…

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Ocrevus infusion aftermath conclusion

Ocrevus infusion aftermath conclusion

Yesterday was a rough day. I was very uncomfortable and tired. It happens but the good news is I knew WHY it was happening. I slept a lot yesterday. I took a 2 hour nap on the couch with my fur babies on either side. Even with the nap I still went into bed at 9:30pm. I feel less fatigued today, I don’t feel that weight in my bones but my skin is still sensitive. I HATE steroids. This was…

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Done, done and done

Done, done and done

Yesterday was the second part to my Ocrevus infusion. My next appointment is February 26, 2018.  The all the headaches that it took me to get on Ocrevus and then all the headaches it took getting the infusion site, I’m happy to say I am done with this infusion. As expected, the infusion was smooth I had no allergic reactions of any sort. Other than being extremely tired from the Benedryl that goes through the IV line, I felt fine….

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Life with MS and living alone, I’m a fall risk

Life with MS and living alone, I’m a fall risk

OK, maybe this is a little too premature. I mean this is only day two of being home without my daughter. I had to run the first errand today that normally she would run for me.  Needed money at the bank. To take my walker out to go to the ATM that’s just way too many steps. So I wrote a check out to myself and cashed it at the drive-thru teller window, it worked. I have to be smart…

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My week and college bound daughter

My week and college bound daughter

This will be a crazy week. My daughter just came home yesterday. She went up to my sister for a long weekend with her boyfriend that went really well. All I know is it’s 9:00am and she’s already out of the house to hang with him before driving him to work. She moves into her NYC dorm this week and by dorm, I mean the New Yorker Hotel. This “dorm” comes complete with tv, refrigerator, fitness room, 24 hour doorman…

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My Multiple Sclerosis from my parents view

My Multiple Sclerosis from my parents view

My dad and I were talking about me having multiple sclerosis. He was saying it wasn’t fair, I have a good heart. My first words were I still have a good heart, that hasn’t changed but I knew what he meant. I heard this before from him, from my mom, my stepdad, from most of my family. They look at multiple sclerosis “stealing” away part of my life. I’ve discussed this topic a few times in my blogs.    …

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