I was approved for a nursing aide

I was approved for a nursing aide

I’ve been so involved with the transition to Ocrevus, that I haven’t talked about that I was approved for the nursing aide by my insurance.The evaluator put the request in for 7 days but I really didn’t want an aide 7 days a week. I wouldn’t even know what to do with someone here that many days.  My caseworker told me, with the multiple sclerosis diagnosis, it is easy to get the increases if needed. I decided on 3 days a week 4 hours a day. Technically I start Monday, but that is considered a processing day, the aide won’t be here until Wednesday.

It will be an adjustment. She is here from 9-1 Monday, Wednesday and Friday. Normally I go to therapy on Monday and Friday at 8:30. So the first thing I have to decide is do I bring her? Do I go earlier so I’m home by 9? Do I go to therapy on Tuesday and Thursday? The truth behind therapy is it knocks me out. Having the aid here would be a big help. Then comes the other side of the coin. I need the aide around to help me cook, shower, clean, get a food delivery, or do laundry. I’m too tired after therapy to do most of that.  So what is the right answer? It sounds silly, even when I read it over, but I find that the more structured my life is, the easier it is for me to deal with.

I must also admit, I’m a little sad. I need the aide for 2 reasons. First, my MS is bad enough that I need help. That’s disheartening. I can’t do a lot on my own. That leads to the second reason. I’m alone.  I’m divorced and my baby is going to college. She’s graduating high school this weekend and will be living in NYC by the end of August. She’ll be very close and home a lot but it’s bitter sweet. She’s my little girl and it’s been “us” for so long. It’s an adjustment like everything else.

I’m very grateful that I got the help I needed even though my head still isn’t 100% wrapped around the idea. I now will need to take the assistance from the person that’s here specifically here to assist. I’m stubborn, I try to do it all by myself. I’ve had 3 falls in less than 5 days, trying to do things by myself. I’m going to have to stop being so bullheaded. This aide, this assistance, is long overdue. I know it will put everyone in my family at ease that someone is here. I know deep down I too am grateful.

8 thoughts on “I was approved for a nursing aide

  1. There are so many frustrating levels to MS. I’m at the point that I finally gave in to using a cane for long walks. I fought it for years but finally MS progressed and I had to relent. I am glad you are approved for an aide because you need the assistance. But I get where you are coming from. ?

  2. People that go into the type of healthcare job that include giving some type of ‘hands on care’ do it because we are wired in a way that this fills a need WE have.
    My cup is full when I get to help someone, get to have real contact with another human in a caring way.
    You may not feel like it, but you are giving someone something special – a purpose and a sense of connectedness to this crazy world we live it.
    I’m not saying all healthcare people are like this, but most yes. And if you get someone ‘burned out’ – request a new nurse asap.

    1. Thank you, that’s a wonderful side to see it from. I truly thank you for your kind words. I give so much credit to caregivers because most of them are beautiful people with beautiful hearts. ❤️❤️❤️

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