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Packing to unpack moving in 7 weeks

Packing to unpack moving in 7 weeks

Now that I’m moving, I have to pack. I went from my house to an apartment. It was a lot of downsizing. Now I’m going from an apartment to a condo. So I have to downsize again. I thought it was hard moving from a three bedroom house with a full dining room, living room, kitchen and den into a two bedroom apartment. Now I have to go from a two bedroom apartment with a huge living room, kitchen, crawlspace,…

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When to go into a wheelchair?

When to go into a wheelchair?

There is only one answer to this, when you absolutely have to!!! Stay on your feet as long as you can. Once you’re in a wheelchair full time your legs will weaken making walking more and more difficult. I know this all but here’s my problem, walking is getting more and more difficult for me. I have both good and bad days but let’s say I go to the small grocery store and walk with my rollator, I can walk…

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No, I’m not lucky

No, I’m not lucky

There’s a reason I have an aide for eight hours a day. There’s a reason I don’t work anymore. Sometimes I feel like I’m running a scam, that I should be working or I don’t need an aide eight hours a day. Especially when someone says lucky you. Let me explain something to you and myself, I’m not a lucky girl.  I’m not a lucky girl that I’m on full disability and don’t work. I’m not a lucky girl that…

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I am a happy sad

I am a happy sad

That is how my friend explained it to me yesterday when I told her how I felt. I’m very excited for my daughter, my college years were some of my favorite years. It’s just has been her and I for so long. My divorce was started in August of 2006. He moved out and it was Mikayla and I and the pets. 11 years and now she’s growing up off to live in NYC and go to school. I know…

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First week with the nursing aide

First week with the nursing aide

Last year at this time, my first blog post said under construction. I hope you enjoyed my weeks worth of revelations of the past year of blog posts. This week, I thought it was gonna be more of a downtime week, didn’t turn out that way. My aide started on Wednesday.  Originally I asked for three days three hours a day. The recommendation of the nurse evaluator was for seven days. My case manager and I decided on three days…

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I was approved for a nursing aide

I was approved for a nursing aide

I’ve been so involved with the transition to Ocrevus, that I haven’t talked about that I was approved for the nursing aide by my insurance.The evaluator put the request in for 7 days but I really didn’t want an aide 7 days a week. I wouldn’t even know what to do with someone here that many days.  My caseworker told me, with the multiple sclerosis diagnosis, it is easy to get the increases if needed. I decided on 3 days a week…

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I’m 45 years old and I’m getting a nursing aide

I’m 45 years old and I’m getting a nursing aide

Certainly didn’t envision this scenario when I was young. I wanted to be a baker. I wanted to go to Johnson and Wales culinary school and become a great baker, not a cook. I don’t know what when I changed that dream to going to school for Hotel and restaurant Management, but I did, since that was my degree I graduated with. I know if asked later in my 20’s I’d tell you I should have been an accountant. However…

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