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Tag: living with MS

I am never getting a handicap van

I am never getting a handicap van

So I had to take my mom and my stepdad to the airport yesterday. We were driving my black Honda Civic two door. His name is Bob. I name all my cars.  Everybody was trying to tell me you should not get a two door car, you have too many devices that need to go in the car for your MS. They were all right. I really should not of gotten a two door car. However he’s so beautiful and sexy,…

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Bears hibernate in the winter, MS patients hibernate in the summer

Bears hibernate in the winter, MS patients hibernate in the summer

Got a wake up call the other day. We went from a comfortable 60° in New York up to  82° overnight.  Silly me, didn’t think anything of it and opened all the windows.  I have roughly 7 windows in my apartment that I opened, well I should say my daughter before she left.  Normally there’s a nice cross breeze in my apartment, but that takes wind. I live upstairs, heat rises, no wind, so no cross breeze and by 2:00 it…

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Starting the process of getting an aid

Starting the process of getting an aid

Good morning and happy Friday to everyone.  Most of the time I dictate my blog through the voice on my iPad. Then I go back and correct any mistakes, which are usually a lot and sometimes hilarious. What obviously never comes across is my voice inflections when I’m speaking, probably why my humor doesn’t come across. I guess you can’t hear sarcasm in words that you read. Oh well, back to my topic, which this morning is, that I started…

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Me and multiple sclerosis

Me and multiple sclerosis

We’ve had a turbulent relationship over the last 19 years to say it mildly. There have been many one-sided fights. I’ve told my story before bug sometimes it’s worth repeating. My first MS attack (exacerbation) was sever. The entire left side of my body went numb and atrophied. I couldn’t walk, hold anything or feel on the left side. It came on fast starting in my foot on a Saturday and by the time I saw the doctor that Friday…

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Forgive and forgiving

Forgive and forgiving

We’ve all said things or did things that we regret, we’re human. It’s very hard to forgive someone who hurt us and even harder to forgive ourselves. We replay the story over and over and over in our heads, punishing ourselves maybe hoping for a different outcome. Definitely trying to justify our actions and why we did whatever we did. I had a wicked fight with my daughter last week and she didn’t do anything really. We made a deal months…

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Counting spoons

Counting spoons

I’ve been up since 4am, listening to old episodes of Cheers, while I laid in bed praying I’d fall back asleep. Even Zoey and Marshy were snoring away, but not me, I just laid there, hour after hour. I finally gave up at around 7:30 and made coffee. I start each day with a certain amount of steam in me that fizzles as the day goes on. How much steam I start with can vary everyday. I read on a…

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Social Security Disability review

Social Security Disability review

Every morning I sit down with my cup of coffee, and I decide what I want to write about.  Today being no different than any other day. Marshmallow, of course the snuggling up next to me, and Zoey’s running rampage through the house. All of a sudden Zoey comes out running out of my daughter’s room  with a sneaker in her mouth. Wish I caught the actual action shot but had to settle for this instead. I’m up your Social…

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Multiple sclerosis symptoms in my head?

Multiple sclerosis symptoms in my head?

My doctor called yesterday because she received part of the results of my MRI. Turns out I have a bulging disc in my neck area on the right side. I at first thought, oh, that maybe could explain the tendonitis I’m having in my shoulder but that’s my left side. Unless they consider the right side when they are viewing in front of you in which case their right is my left. Then my doctor said maybe that could explain some…

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Why me?

Why me?

Living with a chronic illness, there has to be at least one time you’ve  said, “why me”. Let me ask you a question, if you can take your disease and give it to somebody else, knowing how you suffer, would you?  I remember being in one of my doctor, with my step dad, and him making a comment about why I had to have MS. The life this disease has stolen from his daughter.  My reply was, maybe there is a reason…

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