i wanted to go to the specialty grocery store, pick up some plant-based items I couldn’t find at the local store. It’s not a very large store, easy parking, I thought I’d be ok. I had 2 small bags with light stuff. I made it to the car, just had to get in my house. Car to house what 20 steps. 6 steps to first landing until I can regret the chair lift. Yet another task that completely exhausted me…
I have 2 neurologists. One is a straight neurologist who diagnosed me 18+ years ago and has been with me since. The other is a multiple sclerosis specialist in New York City who I’ve been seeing for about 2-3 years now. Both of them work on different aspects of my MS. My neurologist is usually the symptoms manager. He prescribes the daily drugs I take. The specialist deals with which MS drug I’m on. The blood work, MRI scans and…
Multiple Sclerosis has a lot of false information out there. Today I felt like talking about the Myths vs the facts of MS. I got this from Youdontknowjackaboutms.com. My thoughts are written in red. MYTH: MOST PEOPLE WITH MS ARE DIAGNOSED AT AN ADVANCED AGE. FACT: Most people are diagnosed with MS between the ages of 20 and 50. Though less common, MS can also appear in young children and teens, as well as much older adults. I was diagnosed…
I was a good teenager, in realations to other teenagers. I didn’t do hardcore drugs. I didn’t break curfew. I didn’t steal. I wasn’t arrested. I helped around the house as needed. I liked my parents. I liked spending time with my parents. I became rebellious the summer I was leaving for college. I could smell the freedom. I can smell the beginning of something new. I could feel the start of my life. I hated high school. I didn’t…
MS fatigue one of the most difficult symptoms to explain and deal with. 80% of all MS patients deal with this at some point or another. Fatigue is way past a feeling of tired is to the point of absolute exhaustion. It’s the feeling that each limb is 100lbs heavier than it is. Just walking the few steps to a bathroom is daunting and overwhelming. It never fails you’ll be talking to a friend and you’ll say I’m tired (meaning…
As with most of my blog, this too has a back story. About 4 years ago, in the middle of the night I heard my daughter doing something in the bathroom. I remember talking to her and then I remember being on the floor holding my head as blood was dripping down. I remember saying “call grandma”. Since the day I got diagnosed with multiple sclerosis, if a call came in the middle of the night it was never a…
Starting Saturday I will be following a plant based diet. Why Saturday? One of my birthday gifts from my sister and brother-in-law was a gift certificate to Terra Kitchen. They are a home delivery food company that sends the ingredients and you put the meal together. The difference is they cut the ingredients for you which for me is tremendous because I can’t do that anymore. My first delivery is Saturday. I also ordered from Veestro the 21 day kick…
According to the National Multiple Sclerosis Society: Sexual problems are often experienced by people with MS, but they are very common in the general population as well. Sexual arousal begins in the central nervous system, as the brain sends messages to the sexual organs along nerves running through the spinal cord. If MS damages these nerve pathways, sexual response — including arousal and orgasm — can be directly affected. Sexual problems also stem from MS symptoms such as fatigue or…
I’ve blogged on this issue before but I wanted to revisit it again. I HAVE BLADDER ISSUES. I can have both hesitancy and incontinence. However my incontinence is more that I get the feeling I have to go to the bathroom and have a very short amount of time to get there. What happens, and this I’ll never understand, is as I get closer to the bathroom that’s when my bladder starts to release, thus the accident. I wanted to…
I don’t know if I can go so far as to say I am thankful for my MS, but I know I could say I’m thankful for the good days. I know I could say I’m thankful that I don’t have the symptoms of the pain. I give a lot of credit to those out there that suffer from chronic pain. That is the one symptom I really don’t know if I can deal with 24/7. So for all my…
