Third time I’m being infused with Rituxan. I was able to change my infusion place back to my home town instead of NYC. Saves at least 3 hours of the day. I got here at 9am and it’s 9:57 IV is just beginning. Why an hour? Well they didn’t get the doctors orders. Now it is a federal holiday today so getting in touch with the doctor wasn’t going to be easy. Her office at Mount Sinai in NYC is…
I decided to go a little honest about our pharmaceutical world of MS. There has been so much press and promise over this new drug coming out for multiple sclerosis. Put Ocrelizumab in your web search and you’ll get article after article about the promise of this new drug. NEWS FLASH!!!! Rituximab is Ocrelizumab The patent on Rituximab expired in the US in 2015. Basically when they were doing the clinical trials with multiple sclerosis by the time they were…
Look at my last few weeks…I was gearing up for the holidays, got this puppy, go away for Christmas, my beloved dog Boomer died, I spiral into a complete depression, cried everyday for a week plus but my multiple sclerosis symptoms are relatively the same. Are they better? No, but they aren’t worse. Multiple Sclerosis isn’t directly linked to stress, but it never failed for me when I’d have high periods of stress, about one month later, BANG MS ISSUES….
Can’t avoid these things can you? I knew I was going to get sick. I’ve been trying really hard taking precautions but I’m sitting here now sneezing and coughing. I don’t know why but every time you get sick and you have MS it just seems like everything goes wrong. I’m not achy so to say, but my limbs feel very heavy. I feel fatigued even though I’ve done nothing. I didn’t even work out today. I try to stay…
Well the little puppy makes life coordination much more difficult. Now on school days if I want to workout alarm is set for 5:45. Daughter gets puppy from that time until 6:30. I get 45 minutes to myself to workout, brush teeth, get coffee and pee basically. Then I take puppy so she can finish getting ready for school. Yes I could put her back in her crate, I know that. The reason I don’t is because most of my…
http://sumo.ly/moZo I submitted a link to the biotin research/clinical study that showed that it may be helpful in people with progressive forms of multiple sclerosis. I am writing from my own perspective from taking the medicine. I get a 100mg pill I take 3 times a day from Ace pharmacy https://highdosebiotin.net . I just completed my 3rd month. I had a neurologist check up in December and in my timed walking, I was 7 seconds faster than I ever walked in her…
I’ve never been so excited to set my alarm for 6 o’clock in the morning. These last couple of weeks have been a series of emotions that have worn me down. There of been good,there of been awful, but it just wore me out. I know most of you don’t know me, other than what you read, but I haven’t worked out in two weeks. I can’t tell you a time in over six years where I have it worked…
I was starting to “leak through” my current multiple sclerosis therapy back in 2014. I had been on basically Betaseron most of the time until I switched to Gilyenya in 2010. I was switched for the “leaking through” thought. It was holding me on the relapsing remitting sides mostly. I’d have maybe one or two per year on all the drugs. However I would worsen without a so-called attack. My current symptoms would worsen. Back in 2014 the decision was…
I’m in my doctors office right now. My regular doctor this time. I had to repeat blood work from 3 months ago. In that blood test my cholesterol was higher than normal and my Vitamin D was too low. Vitamin D in a patient with multiple sclerosis. This is probably the one link they are certain of with multiple sclerosis is Vitamin D and how that is important. If you don’t know to name a few cases… A study conducted…
I FINALLY had my shoulder checked out by an orthopedist yesterday. He did some maneuvering, X-rays and a visual exam. He told me “there are actually 2 problems going on.” Of course there are, because nothing is simple. “You have tendinitis in the shoulder for sure but your back also is showing arthritis”. More of the fabulous news. I had junior arthritis as a kid, arthritis is my knees with cysts and now in the back. Ok great now what?…
