I realized something being away, my home is definitely the easiest place for me. I love my sisters house it is absolutely beautiful. It’s very easy for me to get around on the first floor. However, there is no bathroom with a shower. They made a shower outside which is really cool but it’s a little more difficult for me to get to. It’s difficult for me to navigate her outside property. The outside property is so amazing but getting…
This was my best purchase for my MS. The scooter comes in three parts the battery, the body and the steering column. It is compact enough to fit into the trunk of my little Honda Civic. I use this all the time and up until the last few years I’d take the scooter in and out of my car and assemble it without any issue. It helped my significantly my last year working. I’d assemble it and zip to my…
Wouldn’t be me if I didn’t have strange things occurring. I googled this and it is actually not uncommon but most people have it after they exercise, not during. I’ve been having it as I swim. This is part of the reason I’m barely making 20 laps when I was doing 25 before. I would say it starts as I am going into lap 11 or 12. I start to feel achy. I feel like when I was taking Betaseron…
My MS therapist was here yesterday. She was doing some balance stuff with me in the pool observing my core. She said you should be walking now without the rollator. Not without help mind you, but with canes. My back is so straight I should be able to be upright, not leaning over with the rollator. So that is the new game plan, to start teaching my legs to walk again with two canes for balance. We did a practice…
Can we talk about handicap parking? I know I’ve had blogs about this before, but it’s still a very sore topic for me. I understand that there’s a requirement that a certain amount of spots, based on the size the property and the total number of spots allocated, have to be given to handicap parking. It just never seems to be enough. Why is it never enough? Because everybody seems to get one. It’s not for the truly disabled anymore….
It wasn’t always a battle. I remember at 40 I was still walking pretty good. I’d have a limp every now and then, when my legs were tired, but an outsider would never know. I’d have occasional bathroom accidents that I used to hide, but back then it was easier. Most of my symptoms were invisible. My balance was never great and I wasn’t running any marathons. Hell, I wasn’t walking any marathons either but I was nothing like I…
My accessory equipment, is far from limited to walking. I’ve been having problems in the bedroom to, and I’m not talking about sex. I’ve been having issues getting on my bed because I can’t get my knee high enough to get myself on. It’s also too high for me to just sit down and get on like that. That’s not all!!! I can’t sit up in the bed, because my core muscles are becoming less and less existent. This creates…
I wanted to clear something up about the wheelchairs. I actually have three wheelchairs. One is the manual one that someone would have to push, one is a travel scooter that breaks down and fits in my car, and my other one is an electric wheelchair with the motor on the armrest. That one is the main heavy duty wheelchair. The travel and scooter is always in my car. It fits in my little civic without a problem. The problem…
I have to admit, I’m getting tired. Those walks to get from my car inside a building are taking longer and longer. Each step is getting harder and harder to make. I don’t know why, I saw my mom for like three seconds the other day and I said I think the next car has to be equipped for a wheelchair. Since this was such a fast visit she said does this have to be a discussion now. Who could…
As promised it was the first question I asked my neurologist. She explains that the study had 93 people in it. According to the study, over the course of a year, of the 93 people enrolled something like 20 of them had relapses that I never had a relapses before. That’s why they deemed that the high does biotin was not effective. This is the information on the application for the withdrawal. http://www.ema.europa.eu/ema/index.jsp?curl=pages/medicines/human/medicines/004153/wapp/Initial_authorisation/human_wapp_000247.jsp&mid=WC0b01ac058001d128. Well my doctor explained that she, as…
