Well some of the fatigue in my arms has lifted, thankfully. I slept for 11 hours last night. Considering most days I sleep about 8-9 hours, I’m not usually lacking in the sleep department. I guess I still needed it. I probably could have slept longer but the phone rang. I had the worst spasm in my leg yesterday. It took a few minutes for the muscles to relax so I could get my leg to lower back down. It…
If I had a dollar for every time someone said to me, “feel better soon” when they see me walking. People see that I’m young and assume I just hurt myself or had some sort of surgery. It’s hard for them to imagine that this is how it is everyday. Unfortunately, I have MS, there is no feeling better soon. I’ve felt good, at least relative to how good I could feel with my disease. I attribute it to my…
It’s official, today I renewed my blog’s domain name for another two years. This also renewed my iPage contract that my blog is hosted through. I made my commitment to my blog, to my readers and to myself. That means I’m going to be around every day for another two years. I have to admit, I’ve been a little lazy with this blog. I haven’t put much effort in lately. It wasn’t done on purpose, it was just a tough…
Yesterday was a tough one. From the moment I woke up, to the moment I went to bed. I even slept for 12 hours. It started first thing in the morning, I fell almost to soon as I got out of bed. The spasticity in my body was at an all time high. I really wanted to take a second neurontin, but I know that can make me very loopy and would make my walking even harder. Since I was…
My MS therapist was here yesterday. She was doing some balance stuff with me in the pool observing my core. She said you should be walking now without the rollator. Not without help mind you, but with canes. My back is so straight I should be able to be upright, not leaning over with the rollator. So that is the new game plan, to start teaching my legs to walk again with two canes for balance. We did a practice…
I didn’t sleep well yesterday. Actually I barely slept. It’s been a very long time since I had a night like that. I don’t do well with lack of sleep, most MS patients don’t. For me personally, lack of sleep can create a very bad day. Luckily, I’m home today. I’ll be cooking in the morning. This afternoon my air conditioner/heater in my bedroom is being fixed. I end today with my MS fitness trainer in my pool. I have…
Tough morning so far, and I’ve only been up for an hour. You ever have one of those mornings where everything seems to happen all at once? I know, everyone has them. I got a lot done it in a very short time. I got a letter from state financial aid, for my daughter, that I wasn’t approved. I had to call and it turns out I have to submit a revisal because I’m on disability. Great!!! I just need…
It wasn’t always a battle. I remember at 40 I was still walking pretty good. I’d have a limp every now and then, when my legs were tired, but an outsider would never know. I’d have occasional bathroom accidents that I used to hide, but back then it was easier. Most of my symptoms were invisible. My balance was never great and I wasn’t running any marathons. Hell, I wasn’t walking any marathons either but I was nothing like I…
I’ve written in my blog, some time over the past week, that my knees are so sore from crawling around when I’m on the floor and I have to find a place to help me stand up. Yesterday was just a bad MS day. I was frustrated, I was having difficulty walking and it just seemed I ended up with my knees down on the ground, not in falls, but I had to keep crawling around to help myself stand…
I had an OT evaluation yesterday. 0T stands for occupational therapy. The difference really between physical therapy and occupational therapy is occupational therapy deals with more fine motor skills. Physical therapy deals with more of the physical stuff. I never realized my health care covered 20 days of both therapies. I thought it was 20 days total. So this will be the first time in OT. For 13 years, I worked in a nursing home as a financial billing office…
