My MS therapist was here yesterday. She was doing some balance stuff with me in the pool observing my core. She said you should be walking now without the rollator. Not without help mind you, but with canes. My back is so straight I should be able to be upright, not leaning over with the rollator. So that is the new game plan, to start teaching my legs to walk again with two canes for balance. We did a practice…
I didn’t sleep well yesterday. Actually I barely slept. It’s been a very long time since I had a night like that. I don’t do well with lack of sleep, most MS patients don’t. For me personally, lack of sleep can create a very bad day. Luckily, I’m home today. I’ll be cooking in the morning. This afternoon my air conditioner/heater in my bedroom is being fixed. I end today with my MS fitness trainer in my pool. I have…
Tough morning so far, and I’ve only been up for an hour. You ever have one of those mornings where everything seems to happen all at once? I know, everyone has them. I got a lot done it in a very short time. I got a letter from state financial aid, for my daughter, that I wasn’t approved. I had to call and it turns out I have to submit a revisal because I’m on disability. Great!!! I just need…
It wasn’t always a battle. I remember at 40 I was still walking pretty good. I’d have a limp every now and then, when my legs were tired, but an outsider would never know. I’d have occasional bathroom accidents that I used to hide, but back then it was easier. Most of my symptoms were invisible. My balance was never great and I wasn’t running any marathons. Hell, I wasn’t walking any marathons either but I was nothing like I…
I’ve written in my blog, some time over the past week, that my knees are so sore from crawling around when I’m on the floor and I have to find a place to help me stand up. Yesterday was just a bad MS day. I was frustrated, I was having difficulty walking and it just seemed I ended up with my knees down on the ground, not in falls, but I had to keep crawling around to help myself stand…
I had an OT evaluation yesterday. 0T stands for occupational therapy. The difference really between physical therapy and occupational therapy is occupational therapy deals with more fine motor skills. Physical therapy deals with more of the physical stuff. I never realized my health care covered 20 days of both therapies. I thought it was 20 days total. So this will be the first time in OT. For 13 years, I worked in a nursing home as a financial billing office…
I don’t know how babies do it, they spend months crawling around before they walk. Unfortunately, I’ve had to learn to crawl again. It’s part of the last five months of physical therapy. Crawling forward and back every time I was there. Why? If you don’t have MS you might not know why, if you have a MS you unfortunately know why. It’s because sometimes when I’m on the floor I can’t get myself back up. This could be because…
There is no winning when it comes to temperatures anymore for me. I can’t handle the extreme cold and I can’t handle the extreme heat. It’s exactly 8:22 as I am writing my blog today and I have all my windows open. Currently the temperature is 65° out going up to 73°. my temperature in my house is showing 70°. That’s a little on the warm side, we’ll see what happens as the day progresses. Where I am sure I…
My accessory equipment, is far from limited to walking. I’ve been having problems in the bedroom to, and I’m not talking about sex. I’ve been having issues getting on my bed because I can’t get my knee high enough to get myself on. It’s also too high for me to just sit down and get on like that. That’s not all!!! I can’t sit up in the bed, because my core muscles are becoming less and less existent. This creates…
I’d like to pretend this isn’t really happening. It’s much easier to live in ignorance. However, I’ve been noticing this symptom coming up more often than I’d like to see it. When I’m having dinner and it can be fish, beans, or rice, Sometimes the food doesn’t get all the way down my throat when I swallow. I almost have to drink a little water to push it down. It’s just almost feels like the food builds up and it’s…
