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Tag: ms difficulties

Learning to crawl

Learning to crawl

I don’t know how babies do it, they spend months crawling around before they walk. Unfortunately, I’ve had to learn to crawl again. It’s part of the last five months of physical therapy. Crawling forward and back every time I was there. Why? If you don’t have MS you might not know why, if you have a MS you unfortunately know why. It’s because sometimes when I’m on the floor I can’t get myself back up. This could be because…

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And so it begins…heat and MS

And so it begins…heat and MS

There is no winning when it comes to temperatures anymore for me. I can’t handle the extreme cold and I can’t handle the extreme heat. It’s exactly 8:22 as I am writing my blog today and I have all my windows open. Currently the temperature is 65° out going up to 73°. my temperature in my house is showing 70°. That’s a little on the warm side, we’ll see what happens as the day progresses. Where I am sure I…

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My bedroom equipment

My bedroom equipment

My accessory equipment, is far from limited to walking. I’ve been having problems in the bedroom to, and I’m not talking about sex. I’ve been having issues getting on my bed because I can’t get my knee high enough to get myself on. It’s also too high for me to just sit down and get on like that. That’s not all!!! I can’t sit up in the bed, because my core muscles are becoming less and less existent. This creates…

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Multiple sclerosis swallowing and respiratory issues

Multiple sclerosis swallowing and respiratory issues

I’d like to pretend this isn’t really happening. It’s much easier to live in ignorance. However, I’ve been noticing this symptom coming up more often than I’d like to see it. When I’m having dinner and it can be fish, beans, or rice, Sometimes the food doesn’t get all the way down my throat when I swallow. I almost have to drink a little water to push it down. It’s just almost feels like the food builds up and it’s…

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Wheelchair debate explained better

Wheelchair debate explained better

I wanted to clear something up about the wheelchairs. I actually have three wheelchairs. One is the manual one that someone would have to push, one is a travel scooter that breaks down and fits in my car, and my other one is an electric wheelchair with the motor on the armrest. That one is the main heavy duty wheelchair. The travel and scooter is always in my car. It fits in my little civic without a problem. The problem…

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Another strange MS symptom

Another strange MS symptom

I’ve had L’hermitte’s sign. It is defined by Wikipedia as: is an electrical sensation that runs down the back and into the limbs. The sensation can feel like it goes up or down the spine. It is uncomfortable. If you never experienced it, for me, I’d get these electric sensations down my leg. I’d get it without even bending my neck. At least it had a name. About four years ago, I started getting this symptom in my lower back…

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Self-love day 6- Doctors, doctors and more doctors

Self-love day 6- Doctors, doctors and more doctors

I’ve been eating right, exercising and going to the doctor as needed. A few weeks ago I saw my specialist for MS. I’ve been seeing a podiatrist for the fungus and the swelling blisters on my toes. Today I’m off to the vascular doctor to discuss the swelling in the extremities and see if I can get any answer to that. Then I have to make the decision if I want to go to the endocrinologist and go further to…

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Self love day 5- thank you letter to my body

Self love day 5- thank you letter to my body

Dear body, I’ve never said thank you. I’ve never appreciated the amazing things you do without me even thinking about it. You breathe without me thinking about it. Each breath is taken without the thought process first. How amazing is that? Food digest and eliminates just by your own functions. Blood is circulated from my head all the way to my feet and back up to my heart and I don’t do anything about it. The functions of the human…

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Ocrevus infusion: how you feel the following weeks

Ocrevus infusion: how you feel the following weeks

Every six months it’s hard to remember what happens. I should look back to my own blog posts. I was so wrapped up in how the steroids made me sick that I forgot that they would also give me burst of energy. It explains how I stood for a half an hour during a work out. This week that burst of energy went from 100 to about 30. I wrote that my workout was pretty bad in terms of stamina…

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Bathroom issues with multiple sclerosis

Bathroom issues with multiple sclerosis

My poor Marshy was sick all night. When my dog is up sick, I’m up. It was a long night but he finally got whatever was in his belly out. Unfortunately it came out all over my blanket that now needs to be cleaned. After that final incident, he was finally able to sleep. It’s a crazy coincidence, but I too woke up sick this morning. Today I normally go to physical therapy. I woke up I got dressed and…

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