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Tag: ms difficulties

Happy Declutter Day

Happy Declutter Day

This is my version of spring cleaning. Today I change my closet from winter back to summer. I say goodbye to my favorite over sized sweatshirts until next year.  I clean the clothes out that I know I’m never going to wear. I keep the clothes that I haven’t worn in probably three years, but still decide I can’t part with. It’s the same pattern year in and year out.  This year I’m getting help from my cousin. My beautiful…

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A more structured life with Multiple Sclerosis

A more structured life with Multiple Sclerosis

This was a very long week. Came off an incredible high of my amazing weekend at the spirit junkie master class. Followed right by my doctor for my shoulder, getting a Cortizone shot and finally feeling better.  Going right back to New York City for another neurologist check up with my specialist. Wednesday through Thursday saw 24 hours of drama with my daughter and her boyfriend. Luckily, that ended with a three hour dinner with friends, lousy food but great company….

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Why continue to exercise with multiple sclerosis

Why continue to exercise with multiple sclerosis

“Exercise is essential not just for overall well-being, but also to help manage symptoms of multiple sclerosis (MS). In fact, exercise might even slow progression of the disease, according to a 2012 review published in Therapeutic Advances in Neurological Disorders.” This was according to everyday health. The National Multiple Sclerosis Society says basically the same thing and adds, “An exercise program needs to fit the capabilities and limitations of the individual. It may need to be adjusted as changes occur in…

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Am I depressed?

Am I depressed?

I have to be honest, I’ve been asked this more than once by family members, doctors and friends. For probably 15  of the 19 years I have MS, I was on Prozac.  I think in my 20s I was miserable for many reasons, especially when I got my diagnosis. However, the main reason for Prozac was because Betaseron, my MS therapy drug, had the side effect of depression.  It’s like you take a drug, but then you need something to…

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Up all night and it wasn’t a party

Up all night and it wasn’t a party

ALL NIGHT!!! I may have slept for twenty minutes at the most. I know at some point my dogs started playing with each other like it was the afternoon. One of them was sick, I was cleaning up my floor at wee hours of the morning. I was crying because when I’m that tired and can’t sleep I get very frustrated and cranky.  I can’t take not sleeping. It’s just the worst thing that could happen t me. It’s this…

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Yesterday was a very disheartening MS day explanation

Yesterday was a very disheartening MS day explanation

First I want to thank everybody. I had a lot of support from a lot of people and I can’t say how much it meant to me.   There were a few contributing factors that went into yesterday that I wanted to explain. First was my mood. I was very stressed over an email I got the night before about my daughters housing for college. Her housing agreement had to be signed and returned to the school within five days…

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Today was a very disheartening MS day

Today was a very disheartening MS day

This one is not for my family. This is a bad one, so I give you the advance warning.  Everyone’s been telling me I’m doing too much.I am a little stubborn about slowing down. I  been having a lot of trouble at physical therapy lately. I had been fatiguing not just a little but severely and I don’t know why. It’s the same routine I had been doing since November. Luckily, I had my daughter around when I got home to…

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Bears hibernate in the winter, MS patients hibernate in the summer

Bears hibernate in the winter, MS patients hibernate in the summer

Got a wake up call the other day. We went from a comfortable 60° in New York up to  82° overnight.  Silly me, didn’t think anything of it and opened all the windows.  I have roughly 7 windows in my apartment that I opened, well I should say my daughter before she left.  Normally there’s a nice cross breeze in my apartment, but that takes wind. I live upstairs, heat rises, no wind, so no cross breeze and by 2:00 it…

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Grrrrrrrrrrrrr

Grrrrrrrrrrrrr

 I can’t even write a post today. I know what I wanted to write I just don’t have any more energy to do it. So far this morning I’ve had to go and recopy Social security documents that I sent out yesterday. The reason why is because they were too big to fit behind the mailbox  for the mailman to actually take so my daughter left them in the mailbox and I have no idea if it was actually taken…

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My multiple sclerosis affects everyone

My multiple sclerosis affects everyone

I’ve written blogs about this in the past, my daughter at 17 takes on the bulk of the responsibility. It’s not something a 17-year-old signs up for, and she’s been doing it for years.  My mother takes on the brunt of the emotional side of my multiple sclerosis. Another topic of my blogs that you could find throughout. My step dad takes on the emotional backlash of what my mom takes on, breaking his heart. Plus he’s the one taking me to…

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