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The daily life and experiences with multiple sclerosis

The daily life and experiences with multiple sclerosis

Yesterday was a bad day. First my doctor visit went as expected,  which was nowhere. What I mean, is that not much could be done at this point, my symptoms are treated symptomatically. He doesn’t really think  that I’m experiencing an MS hug, I don’t even think he really understood what an MS hug was. He’s been my doctor for 19 years and for the first time ever, I was a little shocked. Especially since the first thing we were…

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A year since I was put on disability

A year since I was put on disability

Should I say Happy Anniversary to myself? It was an after work doctors appointment January 21, 2016 when he said “ENOUGH”. He knew since the summer before I was getting worse, I was the one in denial. On January 22, 2016 I called my job and said my doctor is putting me out on disability and I never was back.  I kept pushing and pushing to continue to work. I was working part in the building and part at home,…

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Rituxan infusion day

Rituxan infusion day

Third time I’m being infused with Rituxan. I was able to change my infusion place back to my home town instead of NYC. Saves at least 3 hours of the day. I got here at 9am and it’s 9:57 IV is just beginning. Why an hour? Well they didn’t get the doctors orders. Now it is a federal holiday today so getting in touch with the doctor wasn’t going to be easy. Her office at Mount Sinai in NYC is…

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Your doctors role in multiple sclerosis

Your doctors role in multiple sclerosis

Billy Joel’s song Honesty is playing through my head right now, why? Because when it comes to your MS doctor it is the only way.  Your MS doctor is probably a neurologist of some sort maybe they’re an MS specialist maybe they’re not, but whatever the doctor you need to have a special enough relationship with them that you can speak honestly. You need to be able to be really comfortable that you could say anything especially as the years go…

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