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Tag: ms life

The plant based diet and multiple sclerosis

The plant based diet and multiple sclerosis

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A plant based diet is a diet based on fruits, vegetables, whole grains, and legumes; and it excludes or minimizes meat (including chicken and fish), dairy products, and eggs, as well as highly refined foods like bleached flour, refined sugar, and oil. A 2013 Nutritional Update for Physicians stated, “Healthy eating may be best achieved with a plant-based diet, which we define as a regimen that encourages whole, plant-based foods and discourages meats, dairy products, and eggs as well as…

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The negative friend

The negative friend

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How are you feeling? I never thought I’d hate a question more. Doesn’t it seem like EVERYONE asks you that question when you have a chronic illness. I have my standard answer to people which is, “I’m good”.  I mean what else are you going to say. Truth is half the people that ask the question don’t even want to know the real answer anyway. I don’t even mean that in a mean way, it’s just people are self absorbed…

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I used to dance

I used to dance

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This picture hangs above my kitchen table. It was originally a gift my sister and I bought for my dad but has been with me since the day we tried to give it to him. My dad explained art doesn’t speak the same to everyone. The picture always spoke to me. I always fantasized looking at this picture. To be that wealthy, beautiful lady dancing in the rain on the beach with someone she was completely in love with. I…

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Lack of sleep, fatigue and MS

Lack of sleep, fatigue and MS

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It was one of those nights. I was up all night. I had a little bellyache. I ate Chinese food, I never eat Chinese food.  My belly didn’t agree with the Chinese food. Instead of going into the details of why I was going on all night let’s discuss the details of sleep. The average American sleep 6.8 hours a night. The average MS patient probably needs a good 12 hours a night.  I’m willing to bet they don’t get…

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High dose biotin with progressive MS a patient’s review

High dose biotin with progressive MS a patient’s review

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I have finished my first bottle of high dose biotin.  I’ve been taking a 100mg pill three times a day as the clinical studies patients were taking.  My doctor felt that it was an excellent option for me to try since I am clearly progressing. She found a website www.highdosebiotin.net where you can purchase the pills without a prescription. It is slightly costly at $60 a bottle. Before I tell you my first month thoughts on it let me explain…

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Newly diagnosed with MS

Newly diagnosed with MS

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If you’re newly diagnosed with MS chances are you have in the middle of coming off of having some sort of attack or relapse or whatever you want to call it where you got sick and your diagnosis was made to be MS.  At this point is usually shock. And I’m sure you come home from seeing the doctor and go right onto the Internet looking up everything you can possibly look up for MS. But let’s start at the…

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Your doctors role in multiple sclerosis

Your doctors role in multiple sclerosis

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Billy Joel’s song Honesty is playing through my head right now, why? Because when it comes to your MS doctor it is the only way.  Your MS doctor is probably a neurologist of some sort maybe they’re an MS specialist maybe they’re not, but whatever the doctor you need to have a special enough relationship with them that you can speak honestly. You need to be able to be really comfortable that you could say anything especially as the years go…

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Bladder problems and Multiple Sclerosis

Bladder problems and Multiple Sclerosis

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Could I honestly have MS for 18 years and never discuss a symptom that will eventually effect 80% of people with MS. Let’s start with basic urology lessons of what a healthy bladder does when functioning correctly. We make urine in our kidneys that travels down two tubes called ureters to the bladder, an elastic sac that holds urine. When all is good and working right as the urine is stored the sac expands. When it expands nerves in the…

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MS symptom not in the textbook

MS symptom not in the textbook

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It’s not listed in the MS symptom book but I have issues regulating my body temperature. It happens more often then I care to admit to and usually in the morning when I go out for either brunch or breakfast. I get coffee nothing unusual and eat and it causes my body to sweat. Sometimes is only a mild thing other times I’m in a full blown sweat where my hair line is wet my clothes are wet and you’d…

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Yesterdays blog was a complete crock of sh@t

Yesterdays blog was a complete crock of sh@t

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At the time I probably meant when I said all that positivity stuff but it didn’t take long for it to go right out the window. I do try mostly to follow a very positive lifestyle but sometimes the MS just gets to me I get overwhelmed and things go downhill fast.  My day didn’t really start good even before I wrote that post. During my exercise I wasn’t in a good mood I wasn’t happy with my program I…

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